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Today's PET scan completed

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Posted 4/4/2013 11:32 AM (GMT -8)
tina,

never really thought about FM before, I should say before coming to HW CP. it's a disorder/disease I know nothing about, nor have any of my doctors ever mentioned it. I will, however, start to study the basics of FM and see if it could possible fit the description.

I do know, there are those (take no offense, I am not one of them) that talk as if FM was an imaginary diagnosis. I don't know how they are making that determination. doesn't sound fair to those that are dealing with it.

Yes, porocarcinoma is so ultra ultra rare. The standard definition of an ultra rare disease, is one with less than 10,000 cases world wide. With poro, they still feel there have only ever been 300 cases. I have actually seen lower numbers. It's amazing and unknown how I ever contracted something that rare.

Married 19 years? lol, still newly weds, lol. You got a long way to go to catch up with us. I think what keeps us together, is that we started out as best friends first, and still are to this day. She was 18 when we got married, I was not long back from Viet-Nam going to college. We were married 11 weeks and 3 days after our first date! So much for long engagements, lol.

She is, has been, and will always be my rock, and the reason why despite what I have and am going through, always have a feeling of hope.

David
Posted 4/4/2013 12:13 PM (GMT -8)
David:

I was reading on the PC forum and I wanted to let you know that I'm so sorry about your fellow PC brother's passing. I'm certain that he's in a bright and beautiful place smiling and looking down upon all of you on the PC forum as well as his family.

I also wanted you to know that I will be praying that the tumor isn't cancerous, I'm very worried about the bleeding, I know many of us here are very worried. I will trust that you and Peg know when it's an emergency and if you need immediate attention you'll get it.

I hope that your getaway goes well and that you both enjoy your 39th anniversary. You've been married a long time and it sounds like you both are each others rock.

I haven't been married nearly as long as you, but this June we will celebrate our 28th anniversary. My hubby is a bit tough and gruff, being a military man over 21 years, and serving in combat the first gulf war and then Afghanistan and Iraq. I see a huge change in him he's a bit harder I guess, but he's always taking care of me NO matter what I may need. He's always gentle with me and reminds me that our vows were in sickness and in health till death due us part. He's promised he's not gonna let me die on his watch.

So I'm guessing from the way you talk about Peg she's not gonna let anything happen to you on her watch either. I'm so happy that you have each other and I hope you have a great weekend. Happy anniversary and please if you feel worse let her know so that she can take care of you.

Hugs,
Barbara
Posted 4/4/2013 4:10 PM (GMT -8)
David,

Glad to hear your scan went well and hope the results are good. I, also, looked up porocarcinoma and noticed how very rare it is. I was very glad to hear you are in less pain for now. That is always a good thing.

Sorry to hear about your friend, it's never easy is it? So glad you have a wonderful wife to lean on in bad times.
Posted 4/4/2013 7:05 PM (GMT -8)
thanks, kaely. despite my ailments and pain, I consider myself a very lucky man. couldn't imagine going through all this alone, as some have to.

david
Posted 4/4/2013 7:51 PM (GMT -8)
Hi David
Glad to hear you are heading out of town for the weekend with your wife and celebrating your 39 yrs. Congrats on that for sure.
It's great to see you getting some better pain relief. Hope that continues for you. Praying that you get some positive news re your scan next week.
For now try to put it all on the back burner and enjoy some happy days with your wifey. Nothing like a trip away with your beloved spouse to boost your spirits and make your heart and soul shine.

Suzane

PS. Sorry to hear of the passing of a beloved HW member in the PC forum. I read all the threads and I can tell he was much loved by all of you members.
Posted 4/4/2013 10:56 PM (GMT -8)
Hey David...

When you get a chance -- stop on by the Fibro forum here... and read the top sticky "Fibro 101".... there's a wealth of information there. You'll learn all you've ever wanted to know - and then some, lol. One thing, you'll see a list of FM symptoms - I think the reason SB and I mentioned it is because you have the obvious pain issues... widespread fatigue.... chronic sleep issues... and so forth. Again, these might be related to all of the other things you have going on, but it's worth it to read up on this and at least mention it to your doctor - if, after you read some more, you think this might be a consideration.

I guess the only reason it matters... given that you are already being treated w/ pain meds and so forth... is that it might give your doctor(s) an idea of other meds to use to try to help alleviate some of your symptoms.

At one point - yes, fibro was misunderstood... and some thought it was an "imaginary thing" as you said. I think many doctors thought it was a diagnosis that was given - when nothing else could be found - particularly to exhausted, stressed out women/moms. Frustrating!

However, more and more research has been done - and there are actual brain changes and so forth in FM patients that can be seen... there are also certain brain chemicals that are elevated, as well as others that are too low.... on and on. Anyway - I would just encourage you to look more into it at some point.... can't hurt, right? (no pun intended, ugggh!)...

As for me - 19 years of marriage and 8 kids -- definitely NOT newlyweds, lol :) Anyway - I really hope you and Peg have a great weekend together.... and Happy Anniversary!

Take care, Tina
Posted 4/4/2013 11:08 PM (GMT -8)
Hi David.. just wanted to stop in and say congratulations on 39 years... I hope you and your wife have a wonderful weekend away, and are able to continue to enjoy each other's company for several more years to come. Glad you're finally getting some relief, sounds like that your boost in meds came at the best time, so you could really enjoy your anniversary. Take care, and I hope next week has good news in store for you.
Posted 4/5/2013 11:06 PM (GMT -8)
Wow David 39 years!! That in itself is a great accomplishment and Im sure your wife had something to do with making those 39 years too!

Just wanted to stop in here and Im knowing your having a great time about now on your weekend get away and letting you know how happy I am for you both and you prayers for a long time more together.

Vickie
Posted 4/6/2013 7:47 PM (GMT -8)
Hi David,

Just wanted to say that you and your wife were on my mind today. I just wanted to say I think it's GREAT that you two have been married for so long.

39 years is a long time and I'm sure you both have worked hard over the years to have such a great relationship that you describe. Being best friends helps a lot too.

Wishing you a great rest of the weekend. I'm glad that your new dosage of pain patch is helping you. I know how hard it is to struggle with pain 24/7.

Congrats on the 39 years and I pray that your getaway has been peaceful and with low pain levels.

Hugs,
Barbara
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