CARE - sorry you are having a bad one.
My weekend sucked. For starters, it rained the entire time.
Had two "bad pain" days back to back. Nothing was helping. Spent 5 1/2 hours laying around Saturday, and almost that much Sunday. My wife went off with our oldest son and grand kids, but I stayed home, as I didn't want to be the sore thumb, and I knew I was hurting too bad to be good company.
rains finally ended about 3 pm today. I hope. went to a 2 hour meeting, that was all I could handle, been home in bed ever since.
Tomorrow I finally see the CRPS specialist. Hope he's a good doctor and that I am not just throwing my money down the drain. Will report what happens after I get home.
Need to feel good, as we are suppose to drive to Charleston this coming weekend. Based on how I feel today, feels like a hopeless mission on my end.
Perhaps the rest of the week will go better.
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA 12/12 = 40.x
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012
Severe Chronic Pain, Severe Fatigue, & Urostomy
Member of Prostate Cancer & Chronic Pain HW Communities since 10/2008
“I live in the weak and the wounded” – Session Nine (Movie)