(This is posted both at HW PC and at HW CP, however, due to the
natural interest at HW CP, will probably expand this topic there)
Spent about 45 minutes total “face” time, divided into two
sections. First part was going over
medical history, second part physical examination and minor testing.
I will start with the positive I got out of the visit:
The doctor feels I have a serious situation on hand.
Further testing will be required to fully diagnose my
He feels that the root cause is likely as the result of
extreme radiation damage.
He said that my condition has all the earmarks of CRPS
(Complex Regional Pain Syndrome), and that it seemed to be in an advanced
If it is, and left untreated, I could become completely
disabled and end up in a wheelchair.
Never saw a medical practice so obsessed with the money
part, was badgered from the front desk, with the nurse, then the doctor, then
even trying to check out – it was all about trying to obligate me to spend more
money, and all appointments and tests have to be paid in full up front, even
before being conducted.
Before the nurse began to take my vital signs, she was
required to give me a memorized spill about how the doctor is totally opposed
to the ACA, and how he refuse to see Medicare, Medicaid, and even Champus
paitents, unless they will self-pay. She
said he opted out of all the government systems. I stopped her cold turkey about 5 minutes
into this spill, and told her I wasn’t interested in the doctor’s political opinions.
The offices were ill equipped and shabby in my opinion. Too many pictures of the doctor every where you turned your head and self-made ego
boosting remarks about him on the walls
Also, the doctor made a point of saying that he didn’t
believe in conventional pain medications, and won’t prescribe any
regardless. An odd view to have for a PM
doctor, in all my research, most PM doctors try to limit drug use, but even in
the treatment of CRPS, drugs are often used as part of the strategy. I couldn’t help but wonder if he had lost his
license to dispense drugs. And perhaps
he had been flagged out of both Medicare and Medicaid.
Many of his methods of treatment were identical to the
approach that any Chiropractor would utilize, and to be honest, felt I was in a
Chiropractic office instead of a doctor’s office.
He didn’t have any interest in seeing any of my recent
scans, including the bone scan and CT’s done by the orthopedic doctor last
year, or even of my recent PET/CT scans.
I feel I am on the right track, my chronic pain issues are
serious and on the increase and it could be leading to a more serious
But there was nothing he talked about that a good
neurologist, using conventional neurological care couldn’t take care of.
Since I have Medicare only, I can’t be seeing a doctor whose
treatments and service have to be for in cash and advance. Even the next visit, had I agreed to it,
would cost me over 1,500 bucks up front.
Going to report to my oncologist, and see if he can get me
referred to a top MD Anderson associated neurological practice.
Felt like I basically threw 200 bucks out the window. Not giving up, if anything, I am more driven
to get an answer and a solution if possible.
This just didn’t pan out to be the right answer, one doesn’t always know
in advance. There were too many red
David in SC