Thought I would just poke my head in and say hi to everyone & give you all an update as to what is going on with me, as it's been a while.
I am home from grad school for the summer. Been working like crazy up until now, plus my sister is getting married at the end of the summer, and I am the maid of honor, so I have a lot of responsibilities associated with that as well. My computer died a few weeks ago (thankfully after exams), and unfortunately it was essentially not repairable. So I was without a computer for several weeks, until I went out and bought a new one.
Pain is still not great, but what else is new. I see the neurosurgeon next week, and also meet with one, if not both, of my Medtronics reps to reprogram my neurostimulator. I think that I have gotten used to the sensation of the stimulation over time, and it is now significantly less effective in reducing the pain than it once was. We actually haven't really played around with any of the programs since I had the stim implanted 3 yrs ago, so I'm probably past due for some tweaking anyway. Vision stinks too, but again, there isn't anything more that we can do at the moment.
I've also been dealing with some serious and concerning gynecological problems for the past 4-5 mo (I'll spare you all the details, guys). I just recently switched obgyn doctors, because I was not happy with mine (both in regards to her skills/knowledge as a physician, and the way in which she treated me). Fortunately, I was able to get a referral elsewhere, and I like & trust my new doc. He is starting me on a new medication, but if the problem persists over the next couple of months, I will likely have to have a special uterine ultrasound and biopsy done. Neither of those things sound pleasant to me, so fingers crossed that the problem resolves.
Fatigue is still also a major
issue for me, and I've really been struggling. I thought that I was going to have to put off my exams in May, because at the time, I was having difficulty just walking from one room to the next without feeling like I was going to pass out. The fatigue isn't quite that extreme anymore, but it is still bad enough that I am having a really hard time functioning, and it is seriously affecting my quality of life. If I'm not at work, I'm pretty much in bed. I really hate doing that, but it just feels like my body is shutting down, and no matter how hard I fight it, there is nothing that I can do to stop it. Of course, like all the rest of my medical problems, no one can figure out what is wrong, or how to fix it. Even stimulants don't help. It is incredibly frustrating! I am no stranger to chronic severe (and at times utterly debilitating) fatigue, but these past few months have been particularly rough for me. It scares me, because I can't keep going this way once I'm back in school -- not long term, anyway. I wonder if this increase in fatigue is related to the gyn problems that I have been having, as they started around the same time, but the gyn doc thinks that it is unlikely.
I was supposed to be seeing a holistic doc about
potential vitamin infusions this summer, but apparently his office goofed when they scheduled my appointment (months ago), and so they canceled it last minute. Now the doc does not have any
openings until a week or so before I head back to school. So I don't even know if it is worth pursuing anymore. I'm really annoyed because I made this appointment back in May, and they didn't pick up on their mistake until a few days prior to the scheduled appointment (which was supposed to be today). They screwed up, I didn't. And they had months to fix the problem, but again, did not. I think that the proper thing to do would be to find some time to squeeze me into the schedule asap, but they won't...
Another stress has been dealing with one of my dogs. At the end of May, she suddenly started having seizures, and it's been somewhat of a rough road to get them under control. We don't know why she has them, or what sets her off, and we likely will not ever know. We finally got her stabilized, and she had been doing really well for about
3 wks, but she woke me up at 4:45 am this morning because she was having another seizure. At this point there really isn't anything more that we can do, (unless her seizure become more frequent) but I hate feeling so helpless.
Anyways, that is it in a nutshell. Sorry for the length of this. Hope everyone is doing well! I look forward to catching up with everyone during my time off!
Post Edited (skeye) : 7/2/2013 9:42:45 PM (GMT-6)