Don't you just hate it when the thought is there one minute and gone the next LOL, I do it all the time.
Yes, he did take a pass on everything, I was VERY disappointed with him. He did email my labs to me, my WCB was 2.4 which is LOW, he said you must still have the virus. I'm not so certain, all I know is I feel terrible.
My HBG is 9.3, as you know most hospitals don't give blood until your in the 8.2 range or so. Because of my respiratory issues my cut off for blood transfusions is 9.0, so I have to wait until I'm down to 9.0, real bummer huh. I'm short of breath, weak, very fatigued, and feel crummy, but I need to still drop more and feel worse, before getting some blood.
I was really UPSET with him this afternoon, once I finished my appt in oral surgery I went by Radiology to get my repeat x-ray. Stood in line for 10 minutes waiting, finally get to the lady and she informs me there isn't an order in the system for an x-ray.
I made sure I told him how much pain I was having. Tried to reach him after leaving the department and still haven't heard from him.
I swear sometimes I think Doctors don't listen to us. I know how my ribs felt back in February when they were broken, they feel the EXACT same way now. If I don't hear from him tomorrow, guess I'll visit the ER.
My feet and ankles aren't feeling any better. I think I've tried everything out there. Anyone have any suggestions for some much needed pain relief on the bones of my heels and my Achilles tendons?
I'm gonna go now, take a hot shower and climb into bed. Hopefully, I'll stay asleep tonight. Thanks for asking about
me Vickie, I really appreciate it.
Question for you, how are you feeling, after your ordeal with comming off your medication due to your QT interval being extended? How extended is your QT interval? Did they make you back off on the drug? If so how is your pain doing?
I have NO intention of coming off my medication. I asked my pulmonolgist about
the drug induced coma and the ketamine infusion for a week. She said "NO WAY IN HE!! WILL I APPROVE THAT!
She said if I were healthy and only had pain issues, maybe so, but I'm a complicated case with SERIOUS lung and heart issues, she feels my being on a vent for a week is a huge risk to me. Possible infections, more importantly she's afraid I will not wean off the vent 7 days later.
So no need to worry about
me going through the WD on this medication. The down side is they won't increase my dosage on this drug, because I'm at my limit for the extended QT interval. Not sure what will happen for me pain wise.
My pain isn't being controlled and I'm having a hard time keeping sane because of it. Someone is gonna have to budge and increase my dilaudid OR give me something else. If you think of the question, plz ask away.
I'm off now, hope you have a good night Vickie and I hope you are feeling well and having low pain levels. Thanks again for asking about
DX- RA, Lupus, Fibro, LGL Leukemia, Pulmonary Hypertension, Bells Palsy, Gastroparsis, Blood Clots, Cateracts, Glaucoma, Chronic Pericarditis & Pleurisy, Severe Anemia. Way to many medications to list.