I agree with Sookie. I personally HAVE had 2 doctors include letters/written documentation in my file & they referenced them in subsequent notes & not in a positive way. I was not even angry or demeaning. All I did was carefully state treatments & reactions & expectations. Just the fact that it was typed & multiple pages worked against me with one neurologist who had always been fairly helpful. He put my letter in file & also referenced it in his notes. It didn't really negatively impact me until I switched doctors due to him moving out of town. And then wanted to switch again b/c new neuro wouldn't have appointment for 3-4 months at a time. For some stupid reason, some doctors (not all) believe that a patient who takes that much time to write out their medical problems is malingering or has somatoform pain disorder or anxiety disorder or some other mental illness. And that's assuming you don't have anything in there that raises a red flag for addiction, chemical coping, stockpiling, or diversion.
As for doctors reading patients' written communications, all I can say is that mine always have. Clearly some doctors don't do, but it's not universal. One thing you could write out is a pain log, if your doctor hasn't already started you with one. Here's a site that has several possible options: www.theacpa.org/Communication-Tools
It can also help to bring a family member along.
Finally, I know this might seem like really cruel advice, even though it's meant to be supportive, but sometimes landing in the hospital can be the best way for a legitimate pain patient to get referrals and proper treatment. It really sucks because you have to be strong enough to be willing to deal with rounds & rounds of useless options, demeaning tests, psych profiles, etc., but it gives the docs a whole lot of "objective" information 24/7 for as long as your in-patient. No guarantees, but that's the best bet in my experience. Be sure not to ever exaggerate your pain to get treatment as that is the surest way to get screwed out of treatment, even if you have a legitimate need.
Make sure your doctor understands that your goal is not to eliminate all of your pain, but instead to reduce it by 25-50%. Even after treatment, I average 2 days per year where my pain is low enough to ignore for at least 60 minutes at a time. The rest of the time, I get just enough meds to barely function independently in society. Agree to try every single non-drug treatment he recommends. Here's a list of some commonly suggested ones: www.theacpa.org/uploads/ACPA_Resource_Guide_2013_Final_011313.pdf
Some will help. Most probably won't, but there's no way to guessing what will work for you ahead of time. Right now my pain specialist's latest idea for me is to start a lacto-ovo diet. I'm not keen on it, but I'm desperate. Also, maybe there's something they can do to treat the condition at its root cause (hysterectomy???).
Wishing you peace & wellness.