Thank you Flower! My surgery has finally been scheduled!! September 11th. I am sooo nervous about
the surgery, but very happy to be moving forward. My protein levels are still low, but I have gained a lot of weight. I am not completely sold on this TPN - I feel like it's just making me fat and I just got a call from my surgeon's office saying they wanted to increase it from 12 hours to 16 hours in order to get me some additional fluids, as I've been getting dehydrated easily. I haven't returned the call yet - putting off the inevitable (I just don't know if I can stomach the idea of carrying that bag around for an additional 4 hours. I'm being a baby I know).
I am down to 20mg on the prednisone and will taper down to 15mg again tomorrow. My surgeon doesn't think I will get down past 15mg for the surgery - But I am going to try. My pain this week has been pretty bad and I have stayed on mainly liquids and eggs all week. At my appointment Monday my DR increased the Percocet from 10mg every 4 hours to 15mg every 4 hours. This has helped some, but I find I really need to keep on top of the pain or the pills are not as effective or take a lot longer to kick in. I am still taking the 10mg OxyContin every 12 hours. Surprisingly, I woke up at 3am this morning and felt a lot better than I have in a while - and this was after going to bed last night feeling really horrible. I hooked up to some extra fluids before bed, so maybe that was the reason, but in any case I have been having a much better day today with a lot less pain - even cleaned the downstairs and did a load of laundry, hubby will be impressed. I am scared to take less pain meds, but have not taken my usual afternoon dose of breakthrough meds, we will see what happens . . .
The surgery will be done open, so I guess the recovery is substantial. Surgeon says to plan on being in the hospital for 10 days, but could be less if I am doing well. My husband is going to try to take a week off once I get out of the hospital to help me at home, but he has used up all of his vacation from my previous hospital stays and is relying on his company's sick bank (this has yet to be approved). If he can't get time off (I really don't know if we can afford unpaid time off right now given that I have been off work for over a month now) my mom said she would take a week or 2 off to help. My son is at daycare Mon-Thur and my parents and in-laws will help care for him when needed. We will try to keep his schedule as normal as possible.
Surgeon says not to plan on returning to work until Christmas time! I am REALLY hoping I can go back sooner. What am I going to do with myself? Just being home the month of August has driven me crazy. I also feel guilt that I am missing out on my time with my son. I have managed to make "special time" with him - I get up with him most mornings (as long as it's not a "bad morning") and get him dressed and then we get back in bed for about an hour and eat breakfast and watch cartoons. We go for a walk to the playground or park (with my husband), bathe, and watch a movie at night once he gets back from daycare. But I still feel like I am missing out. My mom brings him to daycare every morning (something I always did before work) and my husband picks him up, so I don't get to talk to his teachers and see how he's doing or what he did that day. I used to have Fridays off and we would have the day together, now I'm lucky if I feel well enough to join him and my husband at the lake or pool on weekends when they go. Fridays this summer he has spent the day at my in-laws. We are blessed to have such a supportive family and my son loves his grandparents and spending time with them, I just wonder how this is effecting him. I'm sorry - this has turned into a sob fest/pitty party. Just wanted to update on the surgery and my progress. Thank you all for your support!