I've had my SCS since mid 2006. I have had multiple problems with it - mainly related to lead migration and the need for multiple revision surgeries - but I would not be without it for a moment.
Josh - what your PA told you is quite correct.
When working on its optimal settings, mine creates a sensation very much like a smooth, rolling massage. It creates a different sensation - a sort of gentle tingling, though it can be very unpleasant, even very painful, if the wrong area is stimulated or if you get a 'bad' program.
It's important to have as long and as active a trial as you can safely have - and also to make sure you are very honest with yourself and your doctor about
how much pain relief you really have from the trial unit. Most doctors insist on minimum 50% pain relief (ideally 60, or even 70%) before they will consider implanting the permanent unit. I didn't have to myself, but most will also get you to see a psych to make sure your expectations are realistic and that you will not be badly affected if the trial fails.
Surgery - mine have been variable. My first one barely hurt. I took paracetamol for a couple of days and then was fine. My last lead revision was the polar opposite. I had major nerve root bruising and it was terribly painful.
If you've any other questions, please ask
Moderator - Chronic Pain Forum
Full body CRPS, Dystonia, EDS, Dysautonomia (multiple issues) Osteoporosis, Fibromyalgia
SCS, Intrathecal Baclofen/Morphine pump, multiple oral meds - feel free to ask.