Juvenile-onset spondyloarthritis is the first thing that came to mind when you spoke of her joint pain, and elevated Sed rate and CRP. Low Vitamin D can also be a component of JSpA. Low Vitamin D in itself can cause ljoint pain.
From the Spondylitis Association of America:
"JSpA typically causes pain and inflammation in the joints in the lower part of the body, for example, the pelvis, hips, knees and ankles. Other areas of the body can also be affected, such as the spine, eyes, skin and bowels. Fatigue and lethargy can also occur. "
I suggest you go to SSA and look under the section about Spondylitis. Once there look for the section on Juvenile onset spondyloarthritis. If the information there seems to describe what your daughter suffers with, then you can ask her rheumatologist to evaluate her for it. If the doctor says a girl can't get JSpA, then get a different rheumy because that one is clearly out-of-touch with current info.
Moderator Crohn's disease, Osteoarthritis and Irritable Bowel Forums
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.