I just got back from PT. This is what he said, when I mentioned how I've got a number of Drs wanting me to rehab my left shoulder (to r/o a tear), the foot drop, the areas above and below the spine (and the fact I have scoliosis and sponylosis, so especially with my history my hopes for PT would be in learning how to handle my body without doing THAT additional damage to those now-volatile areas, as is), my hip (which while replaced, the complications still loom in terms of 3" of added swelling, still, on that thigh, atrophy, another factor contributing to coordination/imbalance), and the R knee pain, my core strength standing up (not laying down on a table)....
He said to me: If it was a tear in my shoulder, there's nothing they would do for it anyway, so it isn't like PT can "fix" that! (D'uh, no shamrock Sherlock, but we COULD strengthen it and stave off further damage, yes?). Drop foot,...it's been 9 months since my back surgery and given I had signs of foot drop prior, there is nothing they can do to address it, since the nerve is, he believes, permanent damaged, and won't respond to stim.
As for my back pain, he feels we're addressing that by working with the hip, because the more motion I can get in my hip, the more I'll be able to stand upright and thus use my core.
I told him (with respect) that the exercises he has me doing like squeezing a pillow between my knees for adduction, pelvic tilts and bridges and taking lateral steps,...not only CAN I do those by myself at home, but in fact, I DO do them, and I have BEEN doing them before I even saw him.
I expressed concern over being over-braced with my carbon fiber AFO, that the atrophy is so severe now it's actually quite visible (one calf of a hiker, one calf of a 12 year old boy). I don't want to get weaker and just "assume" I cannot gain some type of strength. He said if there's no dorsiflexion activity, I shouldn't be walking around without that brace on, ever, because "that" is what's making me a fall risk.
I tried to make an appointment with the PMC today but they first need my PCP to write a referral (she did already, but it got faxed to the wrong office,...they have three), and copies of "all my medical records" and "all my diagnostics." After they receive ALL of that information, then THEY would call me to set up an appointment.
Getting into a PMC is looking farther and farther away. My PT could tell today that I was in a lot more pain than usual. Even one of the other patients commented on it (since the same people tend to come in around the same time)....I couldn't get comfortable enough for the ice and stim on my back for more than 10 minutes, and asked if I could do it at home where I could curl up.
I also told my PT that THAT is why I come in three times a week, BECAUSE I have so many "issues." He said if he spreads himself out that thin, then nothing will get addressed 100%. I said, "Fine,...that's why I come in,....three,...times,...every,...week!" I said, if we can address them all to at least keep me from falling off the grid, I'm here every other day, it's easier to catch up....or even if we divide up body parts for certain days.... If he's had success with 2 x week for patients, then surely by my coming in so often, we can achieve a balance?
He felt that was not providing adequate and complete care.
I'm in tears again. I feel like I really DID need to ask you guys HOW to approach my PT (so I wouldn't risk anything by shooting my mouth off in anger,...and I am experiencing a lot of anger right now, and I don't always speak wisely when I'm this mad).
I could see his head working around, first and foremost, "how am I going to bill for all this,"...as opposed to, "what can I do to treat her like a whole human being with several problems to get her functional again?"
I woke up in pain both Saturday and Sunday night, and had to take pain meds. I've been sleeping soundly through the nights, too, up until recently. Hubby shoved at me for making so much noise crying out and whining, so even my sleep is now disturbed.
My PCP is out until tomorrow, but I am going to call her and ask about
joining a gym. (I dread she'll say: What does your PT think about
that idea?) I haven't been this upset, anxious, frustrated, depressed, sad, and feeling like I'm starting to lose hope here,....not for YEARS!!
Merrida, I had to edit out a word and I will remind you there is a rule in place on language. Thanks Susie
Post Edited By Moderator (straydog) : 9/30/2013 2:12:11 PM (GMT-6)