Posted 10/8/2013 6:58 AM (GMT -7)
As far as I can see, you would be welcomed at both forums. You have pain issues, and you were on Lupron long term. Glad to see you have been at least reading some of the men's experience with Lupron and HT in general.
However, there's more than meets the eye. Yes, some men are put on it for just a few months. This is often done to shrink the size of the prostate in order to meet the criteria of certain primary treatments, such as surgery. It's also done in conjunction with radiation sometimes, some experts feel that radiation and HT can work well together. Yet, many other experts disagree with this approach.
What you are not seeing, is that some men are on HT, including Lupron, for many, many years. For some, its what is keeping their cancer from progressing faster. But there are serious health risks associated with using it, and definitely serious quality of life issues too. For starters, there is weight gain issues, which can add to potential heart issues. There are the hot flashes (sure many women here know all too well about that part, lol), and for most men, the worse part is it takes your "t" level to near zero, and there goes your sexual interest (libido).
So while you were on it for nothing to do with prostate cancer, there's no doubt in my mind that you are having the same negative effects that even the prostate cancer men go through.
If I did your age correct, you have been off the Lupron for about 8 years now? If so, the direct results of Lupron should have long worn off by now. Most men, when they quit it, return sexually to the point where they were at prior, within a few months to a year. As their "T" level returns and climbs, usually their sexual interest and ability returns.
They even have a special group, within HW Prostate Cancer, believe it's called "Frank Talk", or something like that, where you can get into the nitty-gritty about the sexual problem side. Of course, there are many meds out there for the ED portion, and many men there with ED issues use injections, and many are happy with the results.
Yes, by all means, have a long, frank talk with your doctor. Write these concerns down on paper, and go over all of them. Don't let your young age and pride get in the way. You are too young to have to live with issues like these, and there are answers and solutions out there for you.
Good luck, hope you feel better. We are all here to help you anytime.
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
Open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012