Posted 10/8/2013 8:25 PM (GMT -7)
So sorry you are having such a miserable pain day.
These are what I call my "severe CP days", as opposed to my "regular CP days"
What I do in that situation, first, is prayer.
Second, I will do anything within my abilities or grasps to distract my mind from the pain in my body, this might include watching a movie, surfing the web, etc. Anything other than allowing my mind to focus on the pain itself.
On those bad days, I always feel worse if I am alone in the house (my wife works all day as a nurse), just knowing she is home, somehow makes my worse pain more bearable, even though there is nothing she can do to alleviate the pain.
I am not prone to cry easily, but there are times where I am almost white with pain, close to panic, and will have tears well in my eyes, and for a brief moment, feel like I can not take any more of this...but then I get hold of myself, and it passes.
I wish I had the ability to sleep more, because its often the only real relief we get from the pain, so if you are like me, and are awake up to 20 hours a day, you don't get much break from being awake in pain.
Hoping you have a better day tomorrow. I only do one day at the time with what I am dealing with, I don't deal with tomorrow, until tomorrow becomes today.
Age: 60, 56 at PC dx, PSA 16.3
3rd Biopsy: 9/8 7 of 7 Positive, 40-90%, 4+3
Open RP: 11/8, Catheter in 63 days
Path Rpt: 3+4, pT2c, 42g, 20% tumor, 1 pos margin
Incontinence & ED: None
Surgery Failed, recurrence within 9 months
Salvage Radiation 10/9-11/9, SRT failed within 9 months, PSA: Too High
Spent total of 1 ½ years on 21 catheters, Ileal Conduit Surgery 9/10,
7 other PC-related surgeries 2009-2012