Posted 10/9/2013 1:26 PM (GMT -7)
have not been hear in a long time...somehow always find may way back. Need to vent......
My story (short version). Back and leg issues now going on for what seems like an eternity. 2 lumbar fusions, laminectomy, dozens of epidurals, discograms, pain meds ( some high doses at times), therapy.....etc.
After my last back surgery, lost weight, got back in shape. I worked out 5 days a week,and was feeling great. In January pain started again...
Surgeon sent me for a mri. On his end everything looked great, and his opinion was that I have a large amount of scar tissue. So off to the PM Dr I went for a epidural with Lisis. Did not help one bit, (and got cellulites in my arm from the iv) Ugh
.....relationship with PM ended one visit when he told me that I "was to active" I shouldn't be doing so much. Not only working out, but just working.......I would always walk out with a higher does of my meds or a different stronger med.
Made a appointment with my (very caring) GP. Lost it in is office. Cried and cried and cried....could not, and would not go down the path of being controlled by my pain. Of course he added a antidepressant to my list.......told me to stop going to PM and gave me a new recommendation of new one. Could not believe that he told me NOT to be so active. If I do not keep moving, I tend to get depressed, and there is always the weight gain.
Anyway, New PM was great...change some of my meds, but what I really liked is that he seemed to really care. I never got a chance to find out..... Had to cancel two epidurals with him due to this summer got a terrible case of poison ivy (all over) so was put on high dose of prednisone. Then, woke up one morning with my eye drooping, and rash on rash....turns out it was shingals.
Dr. doubled lyrica, and changed my pain meds, and more prednisone. That was fun.
Ok, in a nut shell was sooooo done with all the meds. Not sure how to describe it, just felt like crap, and could not get back to being me. Had a plan with GP to start tapering off all meds. Well, being the hard headed woman I am, one day just flushed it all down the toilet. OMG withdrawls!!!!! Literally felt like I had lightening coming out of my eyeballs. MY GP was not happy with me, but has know me so long he understood. Our new plan is to go to Norwestern for Failed Back Surgery. Going for new mri tomorrow, and then a month wait to see him.
IN THE MEANTINE.......withdrawls over....pain so bad in back and leg, can not stand it........Catch 22. Don't want to be on meds, but CAN NOT stand the pain anymore. Finding it difficult to even ride the bike or exercise. Getting depressed. Worked so hard to get healthy and back in shape....I am going to see my GP tomorrow........I know he will tell me not be be a hero.....
Well that sure was a vent......Thanks everyone I needed that.