This is a really interesting discussion, as well as terribly sad too, as the poet Louise Gluck wrote, "...goodbye, goodbye-- the one continuous line that binds us to each other." Every time I get ready to post something several other posts pop up with new ideas. In a pretty random order are some of my thoughts on these various things, and no, I have nothing better to do at the moment ;)
-- surprises me to hear about
the pain with self-cathing. I self cathed in 1st grade with a bladder that had been butchered by a malpractice and while uncomfortable it wasn't too bad. Self-cathed again in my mid-20s after a failed urostomy takedown with the bladder rebuilt (poorly) and again, mildly unpleasant but that was it. Not disputing anyone, just surprised to see that, that's all
- I agree with Vickie that those SSD application areas asking to rate the pain and how it effects you can be pitfalls if you're not careful. Aside from the subjectivity, what we say pales in comparison to the weight of test results (and I know not everyone has readily quantifiable conditions.) It's easy for SSD to dispute our pain rating, it's less simple denying piles of MRI and CT scans that look like someone was run over by a truck and put back together again by Dr Frankenstein
- as some others have mentioned, I don't like the pain scale. It's kinda sorta okay for acute pain, where even in its subjectivity there's at least a personalized comparison, but think it's a very poor measurement for chronic pain. It doesn't take in the grinding exhaustion of it all, nor does it factor our tolerance for the middling pain levels, nor does it acknowledge that many with CP have suffered extreme pain experiences which kind of pro-rates our scale towards lower numbers, nor does it encompass the consistent fluctuations of pain throughout any given day. We might be fine by our own lights at the exact moment the question is asked but 2 hrs earlier you were barely able to speak while even one wrong move or an unfortunate change in environment (say being stuck in the car for an hour cause of an accident on the highway) will wreck the rest of the day and maybe then that night's sleep and the following day as well.
- Vickie's descript
ion of the burn victims was fascinating in a terrible way. Thank god I've never experienced anything like that, where the pain pushes people into a completely different realm of perception and reality, but had very brief glimpses during a few periods of extreme illness and pain. I called it "the gray place" one time talking to my wife, where the effort to assimilate the pain takes so much effort that you're really not quite on this plane. You might react in a properly to stimuli but you don't hear the words said or take in most of what's around you; it's like a dream where you're both floating above your body but simultaneously buried deeply within your physical self and the pain. This is a poor descript
ion so will stop here, and again I've never gone through what those burn victims have, or what many here have and do experience either.
- my worst pain experience might be a fullblown migraine coming out of that failed 10 hr surgery I mentioned. I've only cried from pain a couple times and that was one of them. No one knew what to do, I was retching so hard they were worried about
the stitches. My parents were at the nurses station begging them to just knock me out again with versed or something when an orderly also went up and said "Y'all need to do something, that dude is in trouble" (direct quote via my mother). A random resident filling out paperwork overheard and suggested injectable Imitrex, which was a new drug back then. Each of the shots set off more retching but it worked, and may the good lord forever grace and favor that unknown resident
Other pain highlights include: a bowel obstruction from adhesions where spent 3 days in agony cause an acid reflux surgery a couple years earlier meant I couldn't even vomit so the stomach acid and bile just kept building up, barely survived that (and one of the times glimpsed 'the gray place"); a Cipro reaction that caused so much swelling inside an ankle joint that my sole turned blue and squishy from internal bleeding; accidentally tearing out a nephrostomy tube; as a kid a post-myelogram headache in the back of a VW Rabbit during the 3 hour ride home from the hospital; and anyone who has ever gone through dry socket can attest to that muther.
Ahhh, memory lane... :)
- @ Purgatory: I love that you quote "Session 9" in your sig, great line and an excellent movie :)
ed. didn't see Purgatory's post while typing mine, that certainly explains some of the self cath issues
Post Edited (Gosford) : 10/22/2013 2:30:09 PM (GMT-6)