Hi David! I'm so glad you chimed in. You are actually one of the people who I thought about
when I was freaking myself out about
the medication. I actually had bad dreams about
it I was so nervous. Then I thought about
you and how it has helped you very much. If I have any questions would you mind if I ask you for your input? My patch doesn't look like its going to come off... Its just the outsides don't look like they are in contact with the skin fully. Does that make sense? LoL
Please don't judge my family for what I'm about
to say. But, A huge reason I have been so afraid is because I have an uncle who has been on them for ten years but he eats them. He was a heavy alcoholic when I was growing up and about
15 years ago he was in a bad motorcycle accident that destroyed his legs and back. He was originally on oxycontin and chewed them (before the protective time release mechanism was added) and his doctor put him on Fentanyl to try to curb his ability to abuse medication. He claimed it was because the pain wasn't controllable unless he ate them but we all know he's just moved from one addiction to another. He's on 150 MCG every 48 hours. He wears the 100 patch and then every other day sticks the 50 between his gums and cheek. He is impossible to be around on these days. To prevent nodding off he moves from one task to another and won't quit talking and being annoying as can be. We actually call it new patch day and after being around him for two minutes you can tell if its patch day or not. My aunt cries herself to sleep some nights because of this. She's tried to talk to his doctors but they say if he stops cold turkey, he's at risk for a seizure.
Rationally, I know it is the abuse of the med that makes him this way. But for so long, I've disliked the fentanyl because of it. There's a heavy negative memory associated with it so I've been worried about
ever being put on it. When the doctor mentioned fentanyl even my son asked "you aren't going to become like Uncle Eddie, right?" Because our whole family sees this.
I'm sorry to have written so much but you guys are like family so I wanted to tell you the whole story. I can't ask him questions because he doesn't use them correctly and he's run out once or twice (ended up in the hospital both times) and I don't want him to know I am being prescribed them or anything else for that matter. He needs inpatient treatment but he won't get it. He almost got arrested at my grandfathers funeral because he was acting so erratic in front of security at the funeral home.
Thank you to anyone who read all that. And David (or anyone else on them) if you have any tips or tricks I should know... I'd be much obliged! Like if anyone can tell me how long the sleeplessness continued and stuff like that.
Thank you all! You're the best!
Chronic Pain Warrior since 2007
Diagnosed in 2007 - Chronic Pelvic Pain and Stage 3 Endometriosis
PM Patient since 2009
My daily Goal - to make at least one person smile a day. Smiles are contagious and create a ripple effect... that one smile may lead to a miracle! :0)
Post Edited (QT_Pye78) : 10/25/2013 12:03:06 PM (GMT-6)