I don't have a problem with the questions. I'm 28 years old. I've been seeing this gastro doctor since April of 2013. I only have Illinois state Medicaid for insurance. I'm not sure why he is only there like 1 day a week...I think he does a lot of tests over at the digestive health center at the hospital. I'm not sure but maybe he has another office. The office is
open during the week when he is not there and there is another doctor in a lot of times, but all they can do when he isn't there is take a message and get back to me when he responds after being in the office.
I think you are right about
them waiting for the biopsy and other test results before getting me into an oncologist. I have asked for a referral to one but I don't think they are doing that yet. They are actively trying to get me into a pancreatic surgeon. They originally referred me to the best one in the St. Louis area but he didn't take my insurance. Now they are referring me to one at Barnes Jewish hospital or Washington University hospital over in St. Louis. (I'm not far from St. Louis and these are by far the best hospitals around.)
I've realized that this GI doctor's policy is that by no means does he ever prescribe a pain killer to any patient for any reason no matter what. My primary is a PA, not an MD, and he says he is doing everything he can do. He is willing to increase my dosage of Vicodin from 5/500 to 7.5/500 and increase the frequency, but he says he has to wait until my current prescript
ion is due for refill.
I don't abuse drugs, never have. Well I did experiment with pot a little in high school and alcohol a little in my early 20's, but I never do drugs since and I haven't drank any alcohol for 3-4 years. I was never an alcoholic, just a social drinker. Never had any drug tests come back with any drugs not supposed to be there or my pain meds in larger amounts than supposed to be.
I think maybe my best option right now is to find another primary that is an MD. I just worry that the new one won't give me any pain meds at all to help and refuse to give me the little bit of anti-anxiety meds for my panic disorder(Valium 5mg 1xday as needed. 30/month).
This is the only primary that I feel actually cares and wants to help...too bad he isn't an MD instead of a PA because I really like him.
Another thing that is good is my local ER/hospital has seen me enough that they say they understand what I am going through and I am welcome to come in to the ER and/or be admitted at any time. The doctors in the ER seem to be a little upset at first because it is not necessarily an emergency and they typically don't like people coming in for chronic pain, but as soon as they look at my file they apologize and give me what I need. It is usually IV fluids, something for nausea, and pain. They usually give me something called dilaudid and 2mg of it in an IV. I don't know what that is but it helps a lot. They run blood tests and give me antibiotics if my WBC count is high and any electrolytes if those are low, which they usually are. So I have that help too but it just seems crazy to go to the hospital all the time. I usually go ahead and go though when the pain is so bad I start getting depressed.
My Vicodin RX is due for refill on the 11th, so I don't have much longer until my primary can increase the dosage of that and fill it. I just hope that helps a little more.
Mark, I edited out a phrase, talking about
self harm is against the forum rules. Please check out the forum rules that the owner/administrator has for us here at HW. Thanks, Susie
DX changed from UC to Crohn's Dec, 2013. Diverticuli still present & inflamed.
Meds: Pentasa 3g/day, Lomotil 2tabs 3x/day, Questran 4g 2x/day, Atenolol, Celexa, Vicodin 5/500mg 3x/day, Valium 5mg PRN.
During an EGD and EUS, tumors were found on my pancreas which the doctor thinks are neuroendocrine tumors or NETs. Waiting on path reports and appt. with pancreatic surgeon.
Post Edited (Markh) : 1/4/2014 9:46:01 AM (GMT-7)