All three are known to cause severe stomach pain radiating to your back in functional NET. Nonfunctional generally causes no symptoms.
Also size and growth and malignancy play roles in adding to pain levels. Naturally the bigger the tumors grow the more pain they will cause pressing against another organ.
Im not sure whose doing all the tests but if it's not an Oncologist? Get one and sooner rather then later! They're going to be your best bet for getting the right treatment started as well as your pain management.
I do have the severe abdominal pain and it does sometimes move into my back. That is very painful when it does that.
As far as size, the doctor said around 2cm. There are 2 of them attached to each other and one is slightly larger than the other.
My gastroenterologist was trying to confirm Crohn's with EGD and EUS when he found the tumors with the ultrasound. He took biopsies of my pancreas from going through the bile duct and I have to wait for the lab results from those. Should I look into an oncologist now or wait for the biopsy results and discuss that with my primary and gastro doctors?
I am going to see my primary doctor for pain management today. He is a PA though not an MD so I worry that he can't prescribe anything stronger than Vicodin. The Vicodin doesn't help at all. I've been just suffering with this pain for months now and I really don't want to have to wait anymore time at all. I really hope my primary gives me something that will help today. I've had to go to the hospital multiple times because of unbearable pain so I guess that is an option if my primary can't give me something other than Vicodin.
Thanks for the info! I really had no idea what this is..like i said, the tumors were only discovered yesterday.
EDIT: I was just wondering about
something else as well. Could this be why my white blood cell count is always elevated when I get blood-work done? It is usually reported to be 13,500-14,000, but it does go down to around 10,000 after a few days of IV antibiotics(Cipro & Flagyl).