I'm not new to HealingWell but I am new to the chronic pain forum. I spent some time on the j-pouch and ulcerative colitis pages in my past. Lately though, my stomach is pretty under control--god knows I should eat better and work out--it's my pain that is bothering me.
In January 2009, when I was 21, I had a colectomy/creation of J-pouch surgery, then in March I had both the ileoanal anastamosis and the reversal of that procedure, there was a leak. Anyway, until about
a year ago, I thought I was out of the woods. Then this chronic pain shows up.
I had spent so much time in hospitals with so many legitimate medical concerns that going to the ER became my first instinct when I had major stomach discomfort. I did this for much longer than I should have. My most recent ER visit was in May, which is my new record out-of-ER/hospital-time. They never found anything (else) wrong with me, and told me that I was starting to look like someone who sought pain meds. I was just looking for a reason for the pain!
The reason is likely adhesions--I also have PCOS, so there's a good amount of scar tissue down there. The [most effective] solution has been acupuncture, after much trial and error.
I work with a pain specialist, but I'm not in love with the clinic. I would do acupuncture everyday if I could afford it, but between working two jobs and going to school (and taking care of an unruly dog) I don't have the time--or the money.
I can't help but feel alone. I'm 26 and feel 62. I'm constantly exhausted and aching, I come home and automatically plop down on the couch to vegetate. I don't have many friends of my own anymore. My boyfriend is wonderful and supportive, but he, along with several friends, sometimes forgets that I'm not a healthy young person.
I used to be close with my mother, but she has moved in with her boyfriend recently and we speak significantly less these days. I know of an Ulcerative Colitis/Crohn's support group around here, but that hasn't been my biggest problem these days. It's the pain, the fatigue, the weakness.
I know it gets better if you get up and keep doing it, take care of yourself and get/stay in shape--but it's hard work! I honestly don't know if I can do this the rest of my life, but what choice do I have?
I just can't help but feel like it would be easier if I knew I wasn't alone, if I knew that other people could do it, and so can I. If you have any ideas for me please let me know, I really appreciate you reading my post, feeling slightly less burdened already.
Post Edited By Moderator (Blessedx8) : 12/30/2013 1:56:07 AM (GMT-7)