Posted 3/16/2014 8:49 PM (GMT -6)
A little about my background. I am only 24 years old. I have had chronic back pain since at least 9years old. I am a kid of the system and have been abused my whole life. The family I was with since I was about 1yrs old to 15 yrs old cared for people in wheelchairs. I would have to pick up my little sister who was a couple years younger than I am & put her in her chair or bed. I'd have to pick up the heavy chair and put it in the back of the van too. By the time I was roughly 11 I would have to pick up my uncle who was in his mid 20's & put him in his chair or bed.
I have had a severe t9 compression fracture for the longest time. I've been told by a few dr's I'll need surgery. My new primary dr said my only option is surgery now. Other issues causing pain: missing disk, fuzed vertebrea, curve due to fracture. Neck's too straight, inflammation in my whole back and neck. Swollen knuckles, knees. My hip joints hurt, hands, knuckles, wrists, breasts, collarbone, chest, thighs, muscle between arm and chest, migranes that last for days at a time. I have tmj therefore my jaw always hurts too. The list goes on.
I keep being told by dr's & specialists that they see why I am in so much pain, (when I was 18 I was told I have the back of a 50 year old) they all keep saying I need to be on strong pain meds but none of them will prescribe them to me, they just send me to someone else & say they'll treat my pain. My primary is suppose to be referring me to a pain specialist but hasn't even put it in my charts yet.
I am currently taking Tramadol 100mg's (I've been on this for 5 or 6 years) Lyrica 100mgs (been on it off and on for 4-5 years) Several NSAIDS (ibprophen, tylenol, asprin, excederin.) was put on Nucynta 50mgs a couple weeks ago. I use icy/hot cream & patches, aspercream, heating pads, ice packs & I even bought this electro thing. Nothing is helping though. I hurt so much I end up crying from the pain. There's days I have to walk super slow from pain, or hunched over. I've even gotten stuck on the floor a few times. My spine feels like it's going to snap in half. My pain keeps spreading too.
My endocrinologist referred me to a rheumatologist on an emergency level, I see the rheumy tomorrow morning. He said the rheumatologist will helpp me with the pain, give me the kind of pain meds I got in the emergency room last week. I thought I was having another inferior infarction. The emergency room dr gave me a day supply, 6 5mg hydrocodone, I made them last 4-5 days. I've read great reviews about this rheumy, saying he's compassionate. I've also been reading majority of patients rheumys wont treat them if they do they wont give them the pain meds needed. Only seen a couple lucky people who said their rheumy had no problem with give it to them.
What are some of your experiences with rheumatologists? Do you think I will get the medications that work for me & give me the relief I need? I'm so tired of hurting, I hate that the pain keeps spreading. I'm tired of being treated like I'm some kind of seeker or something. I've had dr's tell me I'm too young to be in back pain, yet they have the proof right in front of them! My endocrinologist called my mother in law to the back room with us and started telling me to not go to all these dr's getting pain meds from all of them. WHAT!?! I'm not, I don't even have those kind of pain meds, they can go ahead and test me for the proof. I'm only doing what I'm told, they are the ones who keep sending me to someone else saying they will treat my pain.
A little extra information. I have Hashimotos thyroditis. A heart condition (which all these NSAIDS aren't good for my heart) I've had several kidney infections, was hospitalized last summer for a mass on my kidney. My endo thinks I have arthritis. Most likely have Lupus, (I say most likely because my endo is strongly suspecting that due to my swollen esaphogus, my symptoms match up with lupus, it's hereditary & my biological brother has it, possibly biological mother, can't ask her though, she passed away of scerosis of the liver when I was 2.) My endo also is strongly suspecting I have scleroderma too. I find out next week, have a lot of tests to do this week, lots of appointments.
Extra note: I don't know how to go abouts asking for medication that I know works for me. I use to be on percocets 5mgs but that dr is no longer available. I've read that dr's see it as a red flag if you know what works for you, or if your educated on your pain and conditions. Why is that, I don't understand.