very frustrated person here! I have a complicated story, so I hope you can bear reading this entire thing. Thanks!
I had a bad car accident back in 2003, and have had 2 cervical spine ACDFs, c5/6 and c6/7. I also had a shoulder surgery, and my right leg was broken in this accident.
Well, 11 years later I am still having major issues. I went to pain management after the 2 surgeries on my spine, because the pain NEVER went away or got better.
I decided to stop taking narcotics in 2008, and did so on my own. My pain management doctor from that original ortho practice who did my surgeries wrote a letter for my file, which I still have, stating that I was a very compliant patient, no issues, and that I had requested to take myself off the narcotics.
I have always had terrible migraine headaches, which got much worse after this accident. My neuro has prescribed just about
every conceivable narcotic for this, i have had trigger point injections, acupuncture, botox, you name it.
Well, last year, I decided to go to a migraine specialty clinic out of state, and the docs there said to get off all narcotics, as they were probably causing rebound headaches. I went off all narcotics. At this headache clinic, they determined for sure that alot of my headache pain was coming from the issues in my c-spine.
They did a series of spine injections, and my headache relief was immediate! They referred me to a doc here at home, but he had not been with the practice for 3 years!
I went back to my neuro and they referred me to another pain management practice who repeated the injections on my back, with the goal being radio frequency ablation of the nerves in my spine. They only did C5 because they said that was the only place where they saw "pathology"
After undergoing this treatment for 4 months, they informed me that they couldn't do the ablation because I had had fusions done in the past!! THEY KNEW THIS FROM THE BEGINNING.
They refused to prescribe anything for the pain, so I went to my primary care doc, and was prescribed nucynta 75 mg every 6 hours. It was amazingly helpful, and I didn't feel out of it. Unfortunately, my primary care practice, which had been here for over 20 years closed, and my doctor left the area.
So, I decided to go back to my original orthopedic doc's practice in January because the pain was terrible in my back and headaches. I saw someone in their urgent care, and he actually UPPED the amount of nucynta I was prescribed to 1-2 75 mg tablets every 4-6 hours. They also scheduled a MRI to make sure my back was okay.
Well, the MRI was pretty complicated, and they referred me back to one of THEIR OWN orthopedic surgeons, (not the one who had done the original surgeries) He said that I had "arthritis" and did I want him to refer me to their pain management. I said yes, because I was familiar with their practice and assumed they would help me.
The doctor made me wait 1 1/2 hours and didn't apologize when she walked in. She told me I was a "complicated" patient, showed me my file, (thick) and another patient's file (thin) and sat down with me.
I told her what was going on, what had helped me, and asked if she would please prescribe the extended release nucynta because I thought it would provide a more steady level of control. She looked at me, told me that she would "first do no harm" and that she would have to talk to my neuro before she would even consider prescribing me narcotics.
My neuro told the pain management doc that I had a "real problem" with opiod dependency!!! I never ever took anything except what she prescribed for me, she even told me after I came back from the migraine clinic, that she had "let me down" She never followed me very much, her nurse practitioner did that.
She told the pm doc that I appeared in her office, "out of it" because of overuse of opiod medication, and had periods of unconsciousness. I WAS DIAGNOSED WITH VASOVAGAL SYNCOPE, which made me faint. They KNEW this, but she still made it sound like it was due to the narcotics SHE prescribed. OMG.
The pm doc asked me if I would mind doing a urine drug screen, "just in case" she ended up prescribing me narcotics. I said sure. Well, when I checked on their web portal, the office visit summary stated that I had "tested high for nucynta and soma"
Both were validly prescribed to me and there is NO WAY that I took more than prescribed. I really didn't!!! I am so angry.
The second visit, which I went to because I wanted to confront her as to why she refused to prescribe nucynta for me..she told me about
her conversation with my neuro, and also that she had checked my previous pm records there at this ortho practice and there were "some significant issues" with my record.
The thing she is referring to is the fact the my spouse did steal my narcotics about
9 years ago, and we ended up separating for 2 years because of this. He went to rehab, and hasn't had a problem since then.
A mysterious thing to note: this practice has a web portal, and when I checked the care summary for the date the drug test was given, it said "negative for all" at the bottom. When I called the practice in disbelief because of what she had WRITTEN in the same record about
"high levels" the drug test disappeared from the web portal.
I immediately called their med records department, and picked up a copy that still said "negative" on it. It didn't even test specifically for nucynta, it did say opiods, which nucynta technically is not.
I have been taking soma,1 tab twice a day for years, for migraine relief, since it is due in part to muscle issues in my neck. GEEZ. The past couple of weeks, I have seen a spine surgeon from a prestigous hospital in the area, and he said my spine is "seriously messed up" I had the MRI, and also flex x-rays (which the original practice said was NORMAL)
He is 99 percent sure I have failed fusions, and this pain is horrendous, life changing pain. He ordered a CT scan, and I go back to see him next Tuesday. He said I was probably facing MAJOR REVISION surgery.
I made yet another appointment with this pain doc to try and clear my name. I see her Monday. Is this a good idea? I just want to see the NUMBERS on her freaking drug test to see how she is justifying saying I had "high" levels of these two drugs.
Oh, and by the way, I asked her what my future would look like if I did have failed fusions, and she said, "well, it probably won't get any better, but it probably won't get any worse either, but it will cause pain!!" OMG.
Please, give me some advice as to how to handle this situation. I feel like I have been "labelled" and I should not be, in my humble opinion. Maybe I am deluding myself, but I don't really think so.
All I want is my life back. I am scared of the surgery, but I will do it if there is a good chance of less pain. This pain is so bad, it nauseates me. i take zofran for that. Thank God I have that. PLEASE GIVE ME advice on how to talk with this doctor on Monday. Thank you. Oh, and I have a similar appointment set up with my neuro on Wednesday. Thanks again......
I have given your post a heading & broke it into paragraphs to make it easier to read. Some of our readers have tracking problems when reading. Thanks.
Post Edited By Moderator (straydog) : 5/29/2014 3:08:56 PM (GMT-6)