I don't know if anyone else has experienced this, 2 yrs ago out of nowhere I had extreme spasms all over my body as if I were shocked there was no movement on the outside, 2 weeks later pain in my legs from the knees down to my ankles, pain is excruciating, burning as if a hot poker was inside it dropped me down to the ground. ER xrays nothing shows up. 5 months later spasms in my legs, you cannot see these on the outside, its as if every muscle is moving or nerve inside.
This progresses until constant about
3 mo. into this, Gabapentin at first, no help, seen at Cleveland Clinic had nerve conduction test 2x, no help
Fast forward 16 mo. excruciating lower back pain, as if I am pulling something behind me, it is a dull hard hard sickening pain that makes me nauseated. Past 6 months all over body pain as if I were beaten with a bat.
With the leg pain previously had to wait 9 mo. to get the pain under control, naturally I had to go to a pain clinic 50 mi. away, its just a wonderful experience to pee in the cup every time!
During the legs pain dr. only rx low dose Vicodin 5/500 1x that went on for 6 months, I had to beg for a 2nd pill, then had to go to pain clinic.
With the back pain first I went to ER, IV a pain med w prednisone, worked wonders for 2 wks, then the back pain returns. Rx 10 mg Vicodin, helped for 1 mo., then back to ER same thing in the IV, go to Dr. rec'd Toradol injection and rx for Prednisone. Once the Prednisone was finished the back pain returns. Had epidural, a nightmare 10 hrs later
Now have Fentanyl patch 12mg, Oxcodone 3x,along with Prednisone and Gabapentin worked at first but now the back & leg pain is progressing, past 2 days pins and needles. The Gabapentin doesn't seem to do anything and I've been tapering off that, why bother with it, just another drug expense.
I loved my job outside but now that seems to be gone forever, I can hardly do any physical work as it makes the pain worse.
The Drs. do not collaborate, it seems I'm just left in un-dx pain, oh its been mentioned neuropathy, a little arthritis!! Isaac's syndrome, small fiber neuropathy
Been to Neurology, Vascular Dr., Spine Dr. and lately Rheumy, was seen at Cleveland Clinic Neuro, Spine Dr. and Endo. probably seen another type of Dr. but cannot remember right now.
1 blood test done by Rhemy 1st last yr, nothing stood out.
2nd at Cleveland Clinic, what shows is high WBC, Leuks, RDW-CV, Platelets 475, Abs Neut 14, Abs Mono 1.42, Low MCH 25.5, MPV 8.6, MCH 25.5
3rd 2 weeks ago,Rheumy Dr. says nothing stands out
I'm not liking the Prednisone but if I do not take it the pain is worse, seems the Prednisone works better than the narcotics.
When the leg pain started all I was doing was walking outside in the yard, IMO a snake or insect bit me tho I could not see any marks, or from chemical used outdoors.
I just asked my PCP for rx for Sulfasalazine being its one of the RA drugs used that you do not need an injection for. I have the rx will start it tomorrow or later to see if it helps, it would be a miracle if it would take away any of the pain or spasms so I could quit all these meds.
To make matters worse I've just entered the donut hole with rx's, in the past I've had to fight with the Ins. co and file appeals just to have darn xrays, it been a long journey and I need it to end.
I found this place searching for blood tests and what each one means, so here I am.
Sorry this is long, I take other meds also for another thing not related to pain issues.
I wish you all well and hope some of you are out of pain
Post Edited (limbo lady) : 7/17/2014 1:57:43 AM (GMT-6)