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Linds_
Veteran Member
Joined : May 2013
Posts : 853
Posted 8/3/2014 7:49 AM (GMT -7)
Hi everyone... long time, no see. After my sister died earlier this year I kinda went through a mild depression. Right after she died my daughter broke her arm and had to have a metal rod put in her arm (it is removed now). Then my grandpa died and my uncle (mom's youngest brother) died and I really got low. I saw a counselor for a few sessions and I'm feeling better. I still can't believe my sister is gone and my heart aches everyday but I'm going to enjoy life and I know she wants that.

I did get a new job... just had my 90 day review and I like it much better than Chase. My pain is still about the same... I have ups and downs. The Fentanyl, Elavil and Oxycodone still seem to be my magic formula and I've become more active like I wanted to. I've lost about 15 pounds, it's not much but it'd a start. My daughter and I even completed a 5k walk for my daddy to support prostate cancer research. I had to stop about two thirds of the way but after about a half hour I was able to get up and complete the race.

I hope everyone here is doing well. I missed my HW family but I had a lot going on and really didn't go online much at all. I think about you guys often. It is hard being in constant pain (preaching to the choir) but it's even harder when you don't have a group of folks that can relate to what you are going through and helping with suggestions or letting you vent. I didn't realize how cathartic this board is until I wasn't on it anymore. So how are you all doing?
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Chartreux
Veteran Member
Joined : Aug 2006
Posts : 9664
Posted 8/3/2014 8:52 AM (GMT -7)
You have my deepests of sympathies for your family members, and my prayers are with you!

However the 5k, amazing of you, congrats on doing that and you finished, wow, what a wonderful accomplishment...so very proud of you on that and you should consider that a wonderful goal....wow...

Glad to have you back...
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Linds_
Veteran Member
Joined : May 2013
Posts : 853
Posted 8/3/2014 9:17 AM (GMT -7)
Thanks Chart! I never thought I could ever do something like that but we did it! It felt amazing! If it weren't for my pain management it never would have happened. I wish they'd focus on stories like that in the media. My friend commented just the other day at how amazing the change is from a couple years ago when I could rarely get out of bed. :-)
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straydog
Forum Moderator
Joined : Missing Key Value : en-US, 577 2003
Posts : 18301
Posted 8/3/2014 9:33 AM (GMT -7)
Linds good to hear from you again. So sorry to read that you have lost more family members. I do remember your sister passing, such a tough thing to go through, but you have been through too many for anyone.

Glad to hear that you are working & like it. I am guessing the new job is along the same lines of work you did at Chase.

It sounds like you have managed to get yourself in the right direction, some counseling, taking part in the 5k speaks volumes & being able to hold down a job & have the magic combo of meds to live a decent life. This is the sort of thing that can inspire others to know people can have a life in spite of having CP. Kudos to you & keep up the good work.

So glad to hear the rod was a temporary thing for your daughter. It is amazing how the young ones bounce back.

Take care....
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nvrthesame98
Veteran Member
Joined : Jun 2008
Posts : 6706
Posted 8/3/2014 11:20 AM (GMT -7)
Well good to see you!! Better to see that your on better footing with your life and sometimes it seems as the old folks use to say"you do have to crawl before you walk"

Sorry for all the losses,that's a lot to deal with in such a short time.

Not much different for me,same old same old. Lisa has been worried about you and asked often if any of us had heard from you. She I believe is away from home and the internet for a few days attending appointments back at her old Dr's but soon as she checks her forum I will make sure she she's you have surfaced.

Glad your back and things have settled down some.
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seymour
Regular Member
Joined : Missing Key Value : en-US, 577 2009
Posts : 200
Posted 8/3/2014 11:26 AM (GMT -7)
Hello.

I am So sorry to read that you have lost love family members.

I agree with you: this forum is cathartic: I read it almost all nights. The love of the people in this forum helps in my own pain.

A lot of hugs for you from Spain :) :)

 

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Linds_
Veteran Member
Joined : May 2013
Posts : 853
Posted 8/3/2014 11:49 AM (GMT -7)
It's so good to see you!! It's like coming home again. :-)

Susie, I changed to a completely different career field. I work for Enterprise in Fleet management. The mortgage industry was too volatile and I wanted a change. This job focuses less on production and uses more of my analytical abilities. My manager is a smart cookie and he's been there for 18 years and he has remarked that he's never had an assistant that is as capable as I am (That's a huge compliment).

Iva's (my daughter) arm will never be "fixed" because of a mistake made at the first hospital we went to but she had a great surgeon and only suffered slight loss in her range of motion. She's still going to PT and will most likely have arthritis when she gets older since she broke the growth plate off of her radius in her right arm but it could have been a lot worse. We are counting our lucky stars that I got her to the children's hospital where they knew what to do instead of going where the hospital referred us.

Oh and we found a home!! The other one just wasn't for us. They kept pushing back the completion date and it was a big headache. We found a great two level with four bedrooms and no basement (I didn't want a basement because of energy costs). The new place is better than any house I could have imagined. Things did definitely happen for a reason in our case. I'm in a much better place emotionally than I was the last time I spoke with you all.

Gosh I missed you guys.
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Merrida
Forum Moderator
Joined : Jul 2013
Posts : 4771
Posted 8/9/2014 5:01 PM (GMT -7)
Linds!!

Hey girl, it's so good to hear from you. I'm sorry for the circumstances. I remember when you told us of your sister's passing....to have that followed up with so many other tragedies, well, I can only imagine what a tough go you're having of this.

It sounds like your total career change has been like a weight lifted off your shoulders as well.

You sound very positive and like you're in a brighter place. Welcome back to the fold dear one!!

You have been greatly missed.









M.


PS: Wow, I adore the name IVA!! How beautiful is that?! :)
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Linds_
Veteran Member
Joined : May 2013
Posts : 853
Posted 11/16/2014 7:00 AM (GMT -7)
Hey Merrida!! So proud of you for becoming a mod... you offered such great advice to all of us here. Becoming a mod seems like a natural step for you. How are you?

Right after I posted tragedy struck again and my dad was diagnosed with terminal prostate cancer and he's my best friend and he's been my only parent since I was 9. After my sister died (his only other child) I felt like it was me and him... depending on treatment it feels like it will be just me now. Obviously my depression came back with a vengeance and I had to stay a few nights in the hospital here. They are hoping that Lupron will give him five more years and I am considering going back to Florida to be closer to him and make a lifetime of memories in whatever time we have left. I know life for a cp'er isn't easy in FL but I can't imagine not being there with him. My son graduates this year so if we go it wouldn't be until June.

How are you guys? Is this thread too old to bump, Vicki?
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JulietteSuzanne
Regular Member
Joined : Dec 2007
Posts : 104
Posted 11/16/2014 8:46 AM (GMT -7)
Hi to Linds_ and everyone else on here!

I've been away a long time too. Long story short, I had two Rhizotomies for my face pain and they made it worse. I couldn't teach anymore after the operations and am now on Teacher Retirement Disability. I had the surgeries so I could CONTINUE to teach longer, thinking that it would help lessen the pain, Not the exact opposite!

I see the site has grown. That's bittersweet though: A lot of people in pain, but at least we have a supportive network. I'm sure I'll meet new friends here and hopefully catch up with some old ones. This was always my favorite site. Everyone be blessed and I'll talk to y'all soon!
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straydog
Forum Moderator
Joined : Missing Key Value : en-US, 577 2003
Posts : 18301
Posted 11/16/2014 9:23 AM (GMT -7)
Hello ER & welcome back. I sure am sorry to read what has taken place with you. You are the first person I have read about that has tried this for facial pain. I sure wish it would have worked. I hope you will keep us posted. Yes, we do have a few more new members.

Take care.
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straydog
Forum Moderator
Joined : Missing Key Value : en-US, 577 2003
Posts : 18301
Posted 11/16/2014 9:41 AM (GMT -7)
Linds, good to hear from you but so sorry to hear about your dad. I would be going back to be with my dad if it were me. I am afraid if you don't you will regret it the rest of your life. I lost both of my parents within 18 months of each other. My dad passed away one day before he was to be released from the hospital. He had underwent heart valve replacement surgery, triple bypass & went into kidney failure. I had him moved to a rehab hospital from the original one & was there for weeks & was doing great then suddenly had a massive heart attack after all of the surgery. We lost our mom to lung cancer. Even when you know what may be coming it makes it no easier.

If you are wanting info about Lupron & PC check out the PC forum here at HW. There is a wealth of info from those guys over there.

Take care.
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laurabelle1
Regular Member
Joined : Oct 2014
Posts : 64
Posted 11/16/2014 9:57 AM (GMT -7)
I lost my mom about 2 years ago and I miss her so much, I talked to her everyday and we were so close. She never got to meet my 2 youngest daughters in this life..I'm sure she looks over us. They OP..you should read -Sylvia Browne book- The afterlife..I think it's called. It's a good read for sure. For all of us who have lost a loved one..sorry for your loss and know they are looking after you and will greet u in the afterlife.
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Linds_
Veteran Member
Joined : May 2013
Posts : 853
Posted 11/16/2014 10:54 AM (GMT -7)
Hi Susie!! I am almost 99% certain we are going... I'm going to try to transfer to an office in Florida. I gave him the information to the PC board here and told him what a great support this board has been for me so I'm hoping he'll join. Right now he's so busy trying to convince everyone that he's fine so he's not thinking about his own support but I will stay on him :-).

And you are totally right... I would never forgive myself.
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