Thank you all for your support. My spinal headache is much better today. My PM called me last night due to test results coming in with yet another fun infection (yay me! :P). He did tell me that the nitwits as his hospital (my words, not his) gave me the exact opposite of the instructions I was supposed to get to avoid/treat a spinal headache. Apparently, you're supposed to lie on your stomach. The sheet I got said to lie on my back with head at 30% incline. Turns out that was making it worse. I got almost 7 hours of sleep last night & am feeling so much better. :) Thinking maybe the spinal headache might be gone by tomorrow.
The surgeon did call me today; so did one of the anesthesiologists. I'm definitely feeling more confident with the anesthesia part of it. They said they could skip the Versed (I have a HORRIBLE reaction to it -- actually makes me more anxious, rather than less). Also said I can take my regular pain meds the day of surgery; surgeon had previously told me they would deal with the withdrawal if they needed to, but I needed to pull of my patch & not do any pain meds for 14 hours pre-op. Seemed like the dumbest plan ever. So glad that's not the case.
I really have lost just about
all faith in the surgeon. He's not listening to me at all about
how much scar tissue is up there at C2. I've had 3 surgeries up there. It's basically just one gigantic scar-y mess. He thinks he can get the SCS out (leads at C2, leads at L5 & stim in my right buttock) in 30 minutes flat. I had to work really hard not to laugh out loud. He said he expects it to take 30-40 minutes to get the thing out & then 10-15 minutes to debride the wound & install a drain. My PM has taken out several non-infected SCS'es and says best case would be 2 hours. There are 4 sites. The first 2 won't be bad (I assume), but then he has the wound site & the leads that are scarred in place up in my neck. I haven't wanted to get surgery to do anything about
it, but really the scar tissue up there has run amok. I guess he'll find out when he gets in there. Serves him right for being such a jerk about
this whole thing!
Chart- my SCS was a success. It works fine, helped the pain a lot. It closed up fine. My PM has done about
200 of them & I'm the only one who got an infection. My neurosurgeon actually has a higher rate of infection for his implants than my PM does. And the weird thing was, it didn't have this issue until 4 years after the implant. So bizarre. The only problem I did have when it first went in was massive overgrowth of scar tissue. I went to dermatologist for kenalog shots & it seemed to settle down. Then, out of the blue, it
opened back up again. Probably just a freak thing. Could have just as easily been from the kenalog shots. It was either getting an SCS or have fusion surgery, which carried even more risks. I don't even want to think about
what getting it out will mean in that regard.
Post Edited (Tirzah) : 10/6/2014 7:36:16 PM (GMT-6)