Hey Sue...Just want to offer my support to you, as you search for answers. I can certainly empathize, although my situation is somewhat different. I got SHINGLES in my right eye/face/scalp in June of 2014. I had no clue initially what was happening to me. I was in trials for PM with first Methadone (NO) then Morphine (NO) then Oxycodone (?) for several months prior to the viral outbreak. I was suffering horrid side effects of meds, as I was opiate naive. I was basically already in HELL. Needless to say, SHINGLES made it a whole lot hotter=(
Of course, lucky me--Yay!--the virus attacked the 3 major cranial nerves (the TRI) which I'm told is the worst possible scenario. Of course, I figured that one out, with excruciating pain screaming from every pore on the right side of my head. My hair hurt! My lymph nodes behind my ear/in my neck were swollen and throbbing. Words simply cannot describe the pain I endured for the first several weeks. I took several rounds of anti-viral meds, steroids, and was forced to begin Neurontin.
Fast forward 7+ months...My bloodwork in November confirmed that antibodies are still RAGING. I took 2 more cycles of Valtrex. I'm beginning to realize that I am stuck with PHN of the trigeminal nerves. I have a colony of fire ants "sensation" in my eye/temple at all times. I'm left with a buzzing in that ear also. I'm still taking the Oxycodone, but I'm not happy with the results. I still wonder if that is what "caused" my body to rebel via SHINGLES. For me, this seems to be an EVIL med. My PM doctor told me that "people commit suicide to escape this level of pain". No shart...for reals? I can testify. I realize I am fortunate to have thus far avoided infiltration of the cornea (blindness) and Bels Palsy (paralysis in lips/mouth). I simply don't know where I go from here. This virus has depleted me. I continue with the Neurontin, because otherwise I would CLAW my eye out of my face. My anxiety/depression has intensified, which feeds the virus. My PCP told me that stress is going to slam the lid on my coffin, if I don't get a handle on it. Just how do I do that, especially now? I have spent 7 months battling this relentless virus, in addition to all of the maladies listed in signature, to the point of no return. I digress.
I am so sorry for your suffering. I can empathize with extreme dental issues/pain. I had to have every tooth crowned by the time I was 21. It's been a lifetime of fighting to keep the porcelain crowns, with massive bone loss caused by chemical "therapy" for endometriosis. I hope you find some relief. JMO, but possibly Lyrica...Have you tried this for nerve pain? Several people here have great results, while others (like me) are SOL.
Please let us know what the neuro suggests for you. My email's always open. I'll leave the light on.
Stage 4 Endometriosis
Radical Hysterectomy w/Ovaries removed in 1993-94
Debilitating Pelvic, Vaginal and Rectal Pain
IBS w/constipation, Diverticulosis
Herniated Cervical and Lumbar Discs w/Nerve Compression
Arthritis, Osteoarthritis (Severe Bone Loss), DDD, Sciatica
Severe Depression, Anxiety, Panic Attacks
SHINGLES VIRUS IN MY EYE/FACE since 6/7/14...NO RELIEF IN SIGHT...literally=(
Post Edited (Dixie6) : 1/2/2015 10:15:31 AM (GMT-7)