Posted 1/21/2015 12:41 PM (GMT -7)
Thanks for the responses! Much appreciated!
I know the plan is to use the PCA w/ dilaudid. I do worry that right after surgery, i'll be out of it, forget to push the button and just lie there in pain. But, my mom offered to stay in the hospital w/ me for the first night if I'm really spacey (colorectal surgeon said that would be fine), so she'll remind me to push the button.
Plus, they are going to use one of those balloon/grenade looking things with a line running directly into my incision with some type of pain or numbing medicine for the first 2-3 days they said.
The anesthesiologist agreed right away w/ me about NO epidural…my spinal cord is 6-8 inches longer than normal b/c of the Spina Bifida going undiagnosed for 20 years. He said with my history, he would not suggest letting anyone put in any epidural at all, so that was put in my chart and he said it wouldn't hurt to be very assertive with the anesthesiologist the morning of surgery and tell him absolutely no epidurals allowed. I will not consent to that at all.
Worries about migraines are a bit better. Got botox yesterday, should be working well by surgery, plus they said the time for migraines will really be when i am going off the strong pain meds, so don't worry quite yet. I also worry though about the days i am not allowed to eat, i tend to get migraines when I don't eat or drink enough, w/ stress, and w/ not enough sleep. Hmmm….at least i'll be getting IV fluids!!
I know this is getting long, sorry.
As for the surgeries:
--bladder sling on an already augmented bladder with a stoma
--hysterectomy w/ removal of ovaries, tubes, uterus, cervix, (getting rid of it all I guess)
--colostomy at level of the sigmoid colon, also removing the rectum, (permanent colostomy)
I'm still having issues w/ neck pain, numbness/tingling from neck down to thumb on left side, and the chronic back pain is bugging me more lately (likely tension from stress), I just worry how long post-surgery that stuff will bother me and how much, because the surgery will likely be anywhere from 5-7 hours long, if everything goes well. Long time to not move around!!
Ok, sorry for rambling, the closer it gets to surgery, the more worries i have. guess that's normal though.
Thanks for listening and sharing your thoughts/suggestions with me. It really does mean a lot to me!
I have hope.
Lots of medical issues, lots to be thankful for.
spina bifida (dx age 20), chronic back pain (surgery: tethered spinal cord, spinal fluid leak), neurogenic bladder (augmentation w/ stoma), chronic migraine, TMJ, bulging discs etc C3-C6 (pinched nerve), GI issues (colostomy, bladder sling, and hysterectomy Jan.2015), bipolar type II, anxiety, fibromyalgia, and more. Gonna be ok!