Posted 1/25/2015 9:20 AM (GMT -6)
Sorry it didn't go so well!
Just wanted to share one thing I do before doc appts because I often have trouble expressing myself or describing pain or symptoms…..before I go, like a day or two before, I take some time to sit down and write out everything about my "problem", starting with when the symptoms began, how they have progressed over time / or not changed, what the pain feels like (I usually look up on google "words to describe pain" to help me better pinpoint what I am feeling). I write down what docs I have seen, what tests I have had done, what treatments I have tried. What makes it better or worse, what activities I can do / not do, and for what length of time. At the end, I write down how this "problem" is affecting my life--write it as detailed as you can be, to really try to get them to see what life is really like for you because of your condition.
Unfortunately, pain is one of those things that you cannot see, you cannot do a blood test for or an imaging test. Those things may show whether something isn't quite right, but there is no actual test to show how much pain a person is in. That's why it's so important for us to really be prepared for appointments, we have to "prove" that our pain is real. I have found that the more examples I have of how it affects my life and what exactly it feels like and how intense, etc, the more likely I am to get better treatment from a doctor.
It sucks though, to already be feeling awful, and then rather than the doctor coming in and taking care of you and helping you right away like they would with a badly (obviously) broken arm, we have to expend extra energy (that we don't have much of to begin with) to "prove" to them that something is wrong. It seems very backwards to me. But, that's the way things are right now. Pain patients are more often viewed as being suspicious, or doubted, rather than someone who needs immediate help.
I wish you the best of luck. Don't give up!
I have hope.
Lots of medical issues, lots to be thankful for.
spina bifida (dx age 20), chronic back pain (surgery: tethered spinal cord, spinal fluid leak), neurogenic bladder (augmentation w/ stoma), chronic migraine, TMJ, bulging discs etc C3-C6 (pinched nerve), GI issues (colostomy, bladder sling, and hysterectomy Jan.2015), bipolar type II, anxiety, fibromyalgia, and more. Gonna be ok!