No children or living mothers here, so mother's day didn't have anything going on for my wife and me. My fatigue seems to be decreasing a little--no idea why. Shingles pain is still bad but not quite as bad.
Finally got the last of the flowers mulched and edged yesterday, so now I've got a list of little things around the house that aren't too hard. Hang a hose holder, replace an outlet, replace the old rusty mailbox, that kind of thing. Enough to give me things to do but not too taxing. We're still unpacking boxes from the move, too.
Thusday I have a CT scan and a week from Thursday a doctor's appointment, to see if my cancer drug is still working.
Oh, and I'm finally off of Protonix. A doctor prescribed it to me in the hospital last summer for no reason, other than they give it to "everyone" in the hospital because the stress of illness and hospitalization supposedly increases stomach acid. Now I know how wrong and downright cruel that practice is. When I tried to stop it after the prescript
ion ended, I got stomach pains from the acid rebound of withdrawal and, not knowing what was going on, decided I needed to take it.
Later, my new palliative care doctor explained about
withdrawal, said I didn't need it and could try to decrease gradually with his help, but since I was trying to get other medicines adjusted, probably not the best time. He also admitted that he took it himself and had tried to get off it several times, but was never able.
With other drugs pretty stable now, I decided to taper off. Because the 40mg pill is coated and can't be cut, I decided to taper with time rather than dosage: every 28 hours, every 34 hours, etc. After about
six weeks, I was taking it every 2 1/2 days, and today is my fourth day without it. Haven't had any stomach pains during the taper, and if I don't have any today I should be off it for good.
The big danger will be when I see my palliative care doctor next week and tell him I'm off it, when he hasn't been able to get off it himself. He'll kill me.