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straydog
Forum Moderator
Joined : Missing Key Value : en-US, 577 2003
Posts : 18301
Posted 5/11/2015 9:20 AM (GMT -7)
I am running a little short on time because of some errands I have to run this morning. The sun is out & the wind is blowing like crazy. Hopefully the wind will help dry some of this mess out. Texas has just seen too much water lately & things are really a mess for a lot of people just from water alone not mention the tornado damage.

I hope all you moms had a wonderful Mother's Day. My son cooked me a homemade lasagna dinner all from scratch except the noodles & it was awesome. In addition to the dinner, he also made a foot soak out of Epson salts, zest from a lime, lime essential oil & peppermint essential oil, plus 4 drops of green food coloring to make it a little greener. He put this in small mason jars & not only is it pretty to look at in the jars but smells totally awesome. I just happen to have one of those foot soaking machines & you can bet I will be putting it all to use. I will let you know how it works out. Talk about being completely surprised by all of this, I was. My daughter was there too of course & her step daughter came & ate with us. That was a great surprise. Although, my daughter is divorced from her dad these two are very close & she continues to share a lot of holidays with us which really makes me happy. She is still very much a part of our family regardless of what has happened.

For our new members this is where we checked in & if we feel like talking about what we did over the weekend we do it, or if we want to talk about our week ahead that's ok too.

We have many members here in need of your prayers, so please keep them in mind. If you have a friend or family member that needs prayers, this is the place to ask for them.

I hope everyone has a good week ahead of them.
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Abilene
Veteran Member
Joined : Apr 2014
Posts : 986
Posted 5/11/2015 4:08 PM (GMT -7)
Hi all,
Hope you all had as nice a Mother's Day as Susie. I did and it's not over yet, we're having some more of it next Sunday, too. I love this!

I have a 2nd opinion coming up in 3 weeks for my newly diagnosed thyroid issue. I've posted on the Healing Well Thyroid forum and got some very good advice that I am following, plus lots of information. I may do a post here to get your opinions too.

Spring in Texas has been wet and stormy-very bad storms in many areas.

We're still missing many of our members. Hope they check in soon.
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Angelic_Victory
Veteran Member
Joined : Sep 2012
Posts : 2138
Posted 5/11/2015 4:35 PM (GMT -7)
Glad you had good mothers days! My son made me a sweet card and my daughter bought me one and they went in together to get me a stuffed bear. It was wonderful. They are really enjoying my daughter's kitten, Troy. He's a silly, playful little guy and very cute.

I tried to go back to work Saturday. It didn't go well. My employer wasn't following my Dr orders. They had me work on my feet the whole time, didn't get a break, and also kept telling me to lift boxes in excess of 40 lbs. When I left I was in tears from the pain. I came home, showered, took a pain pill, elevated my knees, and iced my back. The pain was so bad that I'm still feeling it today. My Dr told me to not return to work so I called and got paperwork submitted. I'm disappointed. I want to work but it also forced me to face that my joints are worse than I thought.

This coming week has both of my kids birthdays. They are excited. We are doing sleep over. My son has his Friday and my daughter has hers on Saturday. I want them to have fun but its going to be a long weekend! So this week will be filled with birthday prep.
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nvrthesame98
Veteran Member
Joined : Jun 2008
Posts : 6706
Posted 5/12/2015 1:54 AM (GMT -7)
Well still battling whatever is going on outside my normal CP issues,awoke yesterday again with a fever,runny nose and no voice and after three rounds of different antibiotics this month,a five day prednisone routine,a antiviral med and no response from any it's time to look at something in my environment causing all the upper respiratory problems and sinus issues.

Had a nice mother's day and went out to breakfast,saw all my kids except for the one in Texas but spoke to her. Got lots of cards,flowers and candy. Nice day.

My baby turns 17 today and I feel old!!! Where did the time go? I started this CP journey shortly after returning to work from maternity leave with her so I am also in the 17th year of that as well and again where did the time go?

Hoping all the Mom's had a great day and everyone in the middle of this crazy weather and storms stay safe,my daughter is not far from Susie and they're getting slammed with heavy rains and high winds,tornadoes hitting all around so I am keeping hope this system dies down soon. We're just hot here in Florida and although its nearing hurricane season we are not seeing more than strong rip currents and a dangerous ocean out there from the storms up the coast.

Busy week with birthdays,mother's day,prom and the end of yet another school year.

Wishing all a good week,low pain and those who are in need of prayers many healing thoughts to you.
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proudmom2x
Regular Member
Joined : May 2014
Posts : 147
Posted 5/12/2015 2:04 AM (GMT -7)
Well I actually had a couple low pain days. My husband went above and beyond on Sunday to make me feel special. They woke me up to surprise me with a beautiful necklace that said mom. I had handwritten card to go with it. I went to see my mom and my mom in law before heading home. My hubby then cooked me a special dinner steak and shrimp with some of my favorite sides. He cooks for me all the time but he always makes Mother's Day extra special. I'm pretty lucky. I then relaxed the rest of the day.

I woke this morning to being unable to lay on my back. There is a big knot that is warm and tender to touch. Very bad pain day. I meet my new doc on Wednesday. Hopefully she can make sure this isn't an infection. Also will get a referral to urology. I'll keep ya posted!
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melagain
Regular Member
Joined : Mar 2015
Posts : 194
Posted 5/12/2015 5:49 AM (GMT -7)
I hope everyone had a lovely Mother's Day. I had a leisurely one, wrapped in a sweater, out of the rain and wind. I had breakfast cooked for me and too many presents to open. The best was a card from the granddaughter who signed the card from "me and my baby brother"-- it's a boy! Time to go shopping for blue! :-)

I'll focus on that instead of all the ickiness from going off of the high dose of Lyrica. This week I'll finish the tapered dose and I'll be done. I doubt it means I'll be done with the sweats, itching, sleeplessness and nausea that's cropped up. I'm hopeful that won't stick around long. Please tell me it won't!! LOL. It's worse than the hot flashes from menopause.....ickickick!!
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Leila W
Regular Member
Joined : Mar 2015
Posts : 168
Posted 5/12/2015 7:46 AM (GMT -7)
Susie, Wow that all sounds amazing. What a great son to do all of those beautiful thoughtful things. Thank you for posting the recipe for the foot soak.

Abilene I hope that your 2nd opinion for your thyroid goes the way you would like it to. Have fun with your second Mother's day .... just a bit jealous rofl hugs

Angelic_Victory Glad you had a cute Mother's day. I love kittens.... I'm such a softy lol I am so sorry that your day at work didn't go as planned. I know that disappointment well. (Sad Face) hugs.. Whohooo to the sleepover and birthday week.

Vickie so sorry that you are not getting relief from all those antibiotics, how frustrating. I'll keep you in my prayers. Happy Birthday to your Baby! Yaaa

Angela I hope that the doc can find what that lump is.... Sorry you are in pain. Sounds like you had a lovely Mother's day. Great points for hubby xx

melagain Yaaaa a new baby boy on the way! How exciting! the Lyrica issues sound horrible. I am so sorry xxx hugs

My father is still in the hospital and it feels like they are trying to shew him out even with the leaks in his lungs. They punched that tube into the upper right lobe of the lung April 8th and it has been a down hill fight since then. They are wanting him to go to a Palatable Care home. Today will be many rounds of conversations with doctors over the phone.

My 17 yr old had surgery to remove a ganglion cyst yesterday which was so big it was pushing into the second set of metacarpals and the root was all the way through to the underside of the wrist. They had to cut it open no arthroscopic for this one. She still has a bit of the nerve block wearing off and is miserable. Poor thing. So I am home with her and dealing with dad's issues via phone.

I was referred to a PM and PT on the 30th of April but still haven't received the authentication from Workman's comp. Not on a typical pain management schedule for myself because of my dad and daughter. Can't be on all the meds and function.

My birthday was Friday and Mother's day Sunday. My husband and family surprised me with an over night trip to Point Reyes, California. 40 miles from the house so close enough for an emergency but far enough away to not be home. The most relaxed I have been in 2 years. I did have a bit of Pericarditis while we were there but nothing serious, thankfully. Not sure I remember what it is like to be alone with DH lol. It was great!

Blessings and healing to each of you
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secretlin
New Member
Joined : May 2015
Posts : 1
Posted 5/12/2015 8:26 AM (GMT -7)
I have a lot of chronic pain in my foot due to many surgeries, bunionectomy and hammertoe...also silicone implant in my big toe...then another surgery, a nerve imblasion, in the soft tissue between my big toe and second toe.. Dr. put me on gabapentin for the pain. 300mg, then due to not much help with pain, upped to 400mg a week ago, this to be taken 3x a day...I want to know if Lyrica would be more helpful instead of gabapentin? I also take 10mg of baclofen for foot spasms which does help...please reply about the lyrica...I will ask my dr. about switching over if Lyrica would give me better relief..I cannot walk well due to the discomfort in my feet ....could you please reply here and also to email address secretln@aol.com please

Post Edited (secretlin@aol.com) : 5/12/2015 9:30:54 AM (GMT-6)

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straydog
Forum Moderator
Joined : Missing Key Value : en-US, 577 2003
Posts : 18301
Posted 5/12/2015 8:27 AM (GMT -7)
I will get the recipe from my son so that if anyone is interested in making it. I am going to have to slow down & try it out. I am very excited about it especially since I have a psoriasis outbreak on my feet & several other places. I am constantly looking for new things to try for that mess so who knows maybe this will help, it can't hurt that's for sure.

My daughter has a great artistic talent that I tried so hard to cultivate when she was younger. It just did not keep her interest, however, she always makes me the best mother's day cards. I always look forward to them. I have always told my kids the fact they take the time to make something for me is so much more special than anything they could buy in a store. I have collected so much of their stuff all of these years. Now, I am doing the same with my grandson, lol.
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JamesBW
Regular Member
Joined : Oct 2014
Posts : 137
Posted 5/12/2015 10:13 AM (GMT -7)
No children or living mothers here, so mother's day didn't have anything going on for my wife and me. My fatigue seems to be decreasing a little--no idea why. Shingles pain is still bad but not quite as bad.

Finally got the last of the flowers mulched and edged yesterday, so now I've got a list of little things around the house that aren't too hard. Hang a hose holder, replace an outlet, replace the old rusty mailbox, that kind of thing. Enough to give me things to do but not too taxing. We're still unpacking boxes from the move, too.

Thusday I have a CT scan and a week from Thursday a doctor's appointment, to see if my cancer drug is still working.

Oh, and I'm finally off of Protonix. A doctor prescribed it to me in the hospital last summer for no reason, other than they give it to "everyone" in the hospital because the stress of illness and hospitalization supposedly increases stomach acid. Now I know how wrong and downright cruel that practice is. When I tried to stop it after the prescription ended, I got stomach pains from the acid rebound of withdrawal and, not knowing what was going on, decided I needed to take it.

Later, my new palliative care doctor explained about withdrawal, said I didn't need it and could try to decrease gradually with his help, but since I was trying to get other medicines adjusted, probably not the best time. He also admitted that he took it himself and had tried to get off it several times, but was never able.

With other drugs pretty stable now, I decided to taper off. Because the 40mg pill is coated and can't be cut, I decided to taper with time rather than dosage: every 28 hours, every 34 hours, etc. After about six weeks, I was taking it every 2 1/2 days, and today is my fourth day without it. Haven't had any stomach pains during the taper, and if I don't have any today I should be off it for good.

The big danger will be when I see my palliative care doctor next week and tell him I'm off it, when he hasn't been able to get off it himself. He'll kill me. tongue
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Abilene
Veteran Member
Joined : Apr 2014
Posts : 986
Posted 5/12/2015 11:19 AM (GMT -7)
JamesBW, congratulations on getting off that. I want to know how your doctor handles that. Maybe he can learn from you! That is cruel to get everyone started on a non needed drug. Sure, hospitalization is stressful, but not every stress needs a drug. Good for you!
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skeye
Veteran Member
Joined : Mar 2008
Posts : 3089
Posted 5/12/2015 10:11 PM (GMT -7)
Finished my ketamine infusions for the depression. So far, so good. But now I am in the process of tapering off of my current AD meds, so that they can switch me over to an MAOI. So I'm definitely a little nervous about what is going to happen over the next several weeks, since coming off the meds has always been a challenge for me, even if I didn't feel like they did much while I was on them. And this time around I have to be completely off of everything for at least 2 weeks before I can start the new med.

Ended up having a nasty tooth ache all weekend, and needing a root canal (my first one ever) on Monday. Thankfully, the root canal wasn't nearly as bad as I expected. And I feel a million times better now! Just wish the rest of my pain could be fixed so easily!! But it was a horrible weekend for me between the tooth/jaw pain and eye pain, which was also out of control. I'm not sure which was worse. They were both pretty horrible. And of course, both on the same side of my face, which made it even worse!

Definitely need to talk to my PM about getting something for BT pain, because right now all I am on is an extended release med. Some days that is fine, but others it is not. And going through all the added pain this weekend, yet not being able to take anything for it, really elucidated the need for a BT med even more.

Hop everyone has a good rest of the week!

Skeye
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pitmom
Veteran Member
Joined : Jan 2015
Posts : 2777
Posted 5/13/2015 5:49 AM (GMT -7)
So, I totally missed Tuesday! OOPS! My daughter was up before me for a change and she let the dogs out and made a nice pot of coffee! Sort of a belated Mothers Day gift! I got to stay in bed until 8 a.m.!

Monday, I went over to Aldi's, a grocery store here, because they had a garden arch for $30 and a metal plant staircase (3 steps) for $20. Brought them home and assembled them in the street! While I was working and sweating, we started having intermittent downpours! I got soaked! Since there was no lightening, I felt like a little kid! So refreshing!

Then, my grandson came out and helped me install the new arch at the entrance to my property. It has 2 little birds at the top which goes well with the 2 birds that top my birdbath a few feet back in the main garden bed. The steps I situated on the trailer hitch up front and potted the hot pink geraniums my partner bought me into colorful pots I picked up at Lowe's. Of course, I have to smush all 6 pots off to the side because the cats have decided the steps are for them to get up on the front ledge at the kitchen windows!

I had a small, black iron gate that used to divide the front and back yard spaces but was so low I was concerned my daughters dog would jump it. I hauled it out and attached each piece to the sides of the arch to make it more substantial looking. Zip ties hold it to the arch on the one side and I took some old silver tone curtain rods, spray painted them black to match, and used them as 'fence posts' on the other ends. They have a 'ball' finial so they match the fence posts perfectly!

I have one more slip cover back to make for the second patio chair and then I will recover the little rectangular pillows with the same fabric. Love having something unique!

The lilacs are finishing up, the heat did a number on them! The hot pink azalea is in full bloom. The combination of lilac, lily of the valley, dogwood and freesia is intoxicating! The portulaca in the hanging pots are blooming profusely on the 'street side' of the house. The sunflowers are up about 6 inches and so many have 'self seeded' I have an over abundance! Just when I think I'm done, the store ads come out and I see something else to add!

The new grass is full and lush. And needs cutting again! Ha! The sugar snap peas are up about a foot. The cucumbers have all sprouted and are up nearly 2 inches already! Still no sign of the cherry tomatoes. If no sign still by the weekend, I'll buy a transplant just to be safe.

Hope to get more solar powered lights. One to hang from the arch and a few to put along the 'far side' flower bed. Then, maybe, I'll be 'done'. At least till the ads come out!
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