Posted 6/14/2015 4:56 AM (GMT -6)
Welcome to the forum. I understand the fluctuations deal but if fents giving you otherwise good pain control thats where I would stay trying to figure out how to best reduce those highs and lows and keep it on. We have numerous folks here on fent who are active and manage well.
If you take Susie's advice and do that forum search your going to find many of those posts are my battle scarred life on methadone. Almost 14 years and yes it was a wonderful thing in the beginning, once a day dosing, less than $20 a month, tons of energy and I thought this was a pill sent directly from heaven. As the years wore on I gained tons of weight, had a nonexistent desire to be touched an that's a relationship ender by the way, floated through years with virtually no emotional changes, didn't care about nothing, no joy, no anger, no pleasure, no nothing, life in a painfree bubble without stress of life's normal ups and downs. Sounds nice but not for my kids or family. Did I mention you can fall asleep at the drop of a hat? Sitting at a red light, standing at the sink doing dishes, never saw an entire movie in 14 years, all that energy is great until you stop for 5 minutes. Had severe hearing loss and they attributed it to spinal meningitis from my twenties saying it was progressive in nature and I guess some of it is but ditched one of the hearing aids after I finally got the methadone cleared from my system in the two horrific years it took me only after I had preop ekg and at 54 had issues caused directly from long term methadone use.
I won't get into the battle of getting off and the many times I attempted switching meds they're aall here archived at HW and I can't say it's pleasant reading. Thanks to a awesome PM Dr who literally allowed me control to his pen and writing hand, these folks here and a family who understood I got off and onto another opiate for pain control. It took only more than a year. A very miserable year where there were days I was in a state of complete wishing the end of my life. I didn't cold turkey and I had every med at my disposal to help but the point is nothing will. Methadone is stored in your bones so imagine that pulling out, it hits on brain receptors no other drug but darvocet hits on and its been banned, there's no replacing it only substitution.
No matter what the reason your on it you will always have opiate dependant on your medical records thats the law here in the states, has to be in red warning OR and ER and trauma center that you can not be treated like other patients and you wont be.
You have to do what you think is best but I have to urge you to know what your getting into, do your homework, research and read what others have to say that have been on it long term for pain and not addiction because for a heroin addict it's a good trade.
Good luck to you
CHRONIC PAIN MODERATOR
When something bad happens to you, you can let it destroy you, let it define you, or you can let it strengthen you.