Posted 8/22/2015 6:25 AM (GMT -7)
OK, lets get some more responses. A lot of people here have at least 1 of your problems. But first maybe you can tell us a little more about what you're experiencing. We're not doctors, just patients telling our experiences.
Did you get treated for your Lyme? We have a whole forum for that, so it may be a place to post about that. It was extremely active yesterday, over 2 pages. You can also look up specific items in the archives at the top of the page - in the search box. My son had it, and it came back after a year and he had to go back on meds.
Do you think it was the pseudoephedrine that triggered your autonomic dysfunction? Or did it start with the Lyme?
By the term POTS, do you mean the high norepinephrine type? Have you been checked for a pheochromocytoma?
I have the blood pressure drop on standing, which my cardiologist says is not POTS, just postural orthostatic hypotension. I get a rise in heart rate but usually not above 100 bpm. For my cardiac stress though, I stood up to get on the treadmill and my rate went to 147 for 2-3 minutes before spontaneously settling down.
I also have dysautonomia from breaking my neck. I have constant pain below my neck, the worst being in my legs and feet. My legs and feet are always cold, really cold, not just in my brain, but to touch too. I have to wear long pants on hot days. In winter I wear leg warmers.
I've been tested (EMG), and my nerves are just fine. Except there's a logjam in my cervical spine. Touch feels like pain, and very hot feels just warm.
I don't have visual static, but I have bad tinnitus, but that comes and goes in the level of the sound. I've been told I have Meniere's. I have headaches and dizziness sometimes, which go along with that diagnosis. but it started with the cervical spinal cord damage.
What do you mean by "sympathetic block?" The sympathetic system is huge. Do you have a location in mind? It won't do anything if you don't have a specific spot that is causing nerve compression. Like many others on the forum, I get blocks of various types, also nerve ablations, but they're for specific pain being caused by arthritis or other bony compression on nerves. I don't think just picking a spot, say lumbar, and popping in some steroid, will stop something generalized like POTS, unless there is something showing on MRI or EMG. I've had many injections for sciatica, several in cervical spine for arm and shoulder pain, and they don't relieve my hypotension, tinnitus, or freezing legs at all.
Maybe you have something that can be fixed. I probably am misunderstanding your post. I hope others will chime in and find something that will help you.