Posted 1/20/2016 4:03 AM (GMT -7)
I don't check in here much these days but happened in just now and noticed your post. I've got "full body" CRPS - though worse in my legs & feet than anywhere else.
Splints are kind of controversial... CRPS really is a "use it or lose it" kind of situation - the more abnormal your movements are (whether through guarding because you're trying to protect yourself from contact that will cause pain, splinting or whatever), the more it seems to reinforce abnormal nerve signalling - not just with regards to pain, but also things like proprioception (having the sense of where your limbs are in space, normal limb movement/placement, etc.) That said, a large number of CRPS-ers I know (myself included) use things like Tubigrip bandages on our limbs...I'm not sure what you find, but for many of us it's less painful to have something in constant close contact with the skin, rather than having the movement of air or clothes.
I do wear splints too... I've got severe dystonia & resultant contractures in my legs & feet due to the CRPS, so I have custom made AFOs that I wear as much as possible during the day. These let me do a small amount of walking - and prevent me weightbearing on the tops of my feet as I'd do otherwise. I also wear wrist splints at night because I clench my hands/wrists a lot - particularly at night - and it's now causing carpal tunnel issues (which in turn exacerbates my CRPS symptoms).
What "comes and goes"? Pain, or other signs/symptoms? My experience is much as Susie said - while my pain might vary in intensity and character, it is a constant. Only time I've no pain is when I'm unconscious. Even normal sleep it's there in the background and is forever waking me - if indeed I get to sleep in the first place.