Susan, no you are not being nosy, you need help. I have not had the same situation you are dealing with. There is nothing worse than to have something going on & be told there is nothing wrong by a dr. I do understand the not wanting to see another colon dr. Sometimes we do get dr burnout. I think with you just having surgery, it is a little soon before you could get another specialist to see you. Usually they don't want to get involved when someone has had surgery as recent as you have. However, it sure may be worth pursuing & trying to line up. You know your body better than anyone.
The reason I mentioned it sounding like a nerve condition is because you talked about
not being able to stand having clothing touch your skin. There is a condition called CRPS, do a quick at the Mayo Clinics website. I use their web site because the info there is accurate, there is a lot of garbage out there. This is strictly a guess on my part, I am not a dr. People that have CRPS, generally have some type of trauma or even surgery that causes this. This is strictly a guess, but I really think you have a nerve issue going on in there somewhere. Narcotics have little to no effect on true nerve pain. However, there are many medications used to treat nerve pain like Neurotin, Lyrica, Cymbalta & Nortriptiline to name a few. It usually takes a couple of months on these meds to get your dosage right too.
What did your pain mgt dr think was going on?
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Post Edited (straydog) : 1/28/2016 12:07:58 PM (GMT-7)