Severed Ulnar Nerve!!!

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Butterfly53084
New Member


Date Joined Feb 2016
Total Posts : 5
   Posted 2/22/2016 1:23 AM (GMT -6)   
Hello and thank you to anyone taking there time to read this.I fell backwards down my stairs.I hit my right elbow on my iron railing post.I sliced my arm open very bad .As soon as the injury occured I could not feel half of my arm,my pinky finger and half of my ring finger .To skip a long part my husband drove me to hospital where they gave me pain meds gave me an exray and told me I had broke my medial epicondyle.They sent me to another hosp.that place stitched me up and said call them in a week to set up appointment .I went home and was so upset because I knew there was somthing really wrong.The next morning I called my pcp.She set me up w a orthopedic surgeon that specializes in upper extremity.W in six days I had surgery to have my bone screwed back together where they found out I totally severed my unar nerve and they preformed micro surgery that took six hours total.since then I have claw fingers in my pinky and index finger .I still have absolutely no feeling in my last two fingers.my right hand is very week therapy is not helping.what I can feel is nerve pain .I'm on gabapentin 3xs/day and occasionally take a 7.5 hydrocodone.the meds are starting to not work.I'm scheduled to get an emg done this week to see how far the nerve has regenerated.upon this my surgeon wants to do a second surgery where they take nerve endings and plugg them into my ulnar nerve.He calls it super charging my nerve to help jump start the regeneration process since it's so slow.I am 31 year old otherwise healthy active mother of 3.very desperately seeking answers or opinions from anyone with simular injury..my right hand is losing muscle fast no matter what I seem to do to stop it .I just want to regain as much movement and strength that I can,just to be able to get it as close as possible to normal or at least know I've tried everything possible to regain full function.Thank you very much to any one that takes the time to read my post!!

pitmom
Veteran Member


Date Joined Jan 2015
Total Posts : 2407
   Posted 2/22/2016 7:07 AM (GMT -6)   
Hello Butterfly. Your post does not indicate how much time has passed. Nerves take a long time to heal. You say the "meds are starting not to work" but don't say what you mean by that. In some ways, pain is a 'good' thing. If the nerve is 'waking up' you want to feel that!

I can only assume a transposition was done. If so, understand that the nerve is now buried in muscle tissue and use of those muscles will irritate the nerve for a while. I had my transposition done back in 1996 and if I use the forearm muscles alot, my arm will feel like it has the flu...achy beyond belief! Heat and ibuprofen are the only things that help with that for me.

My nerve was not severed...it was shredded. It had dislocated because the sheath was damaged from hitting my elbow on metal. Then, attention was paid to the shoulder injury first and the elbow was not diagnosed for 4 months! I still have that 'funny bone' feeling, especially if I hit my forearm where the nerve now 'lives'. Placement of my forearm, on the edge of a table for example, can be uncomfortable.

My physical therapist used ice, massage, and something he called 'points' where a 'stylus' was placed at points along the nerve and an electrical charge was sent through the stylus to 'zap' the nerve. I don't know if you've had this done? Remember, I had this done 20 years ago and therapies change. It may be worth asking about.

Keep posting and let us know how you are doing.
multiple surgeries for rotator cuff both shoulders with residual chronic impingement syndrome, ulnar nerve transposition, carpal tunnel release, wrist ganglionectomies/denervectomies/tenolysis, multiple herniated discs, tarlov cyst, whiplash, bursitis of hips, tendonitis, torus, 3rd degree shoulder separation, torn labrum, ovarian cysts, fibroid tumors of the uterus

Butterfly53084
New Member


Date Joined Feb 2016
Total Posts : 5
   Posted 2/22/2016 9:48 AM (GMT -6)   
Th for responding .what I meant w my meds is I think the dose I've been taking needs to be raised .it's losing its effectiveness.sorry I fell on November 10th 2015...and had the surgery November 16 2015.so it's been about 4 and half months since surgery.after surgery all I felt was pain from the trauma.now all I constantly feel is tingling burning pricked feelings in my pinky and that half of my hand even though it's numb to the touch.you can probably cut my pinky finger off and I wouldn't feel a thing .as for the nerve regenerating I believe it is .I feel new sensations everyday .I am starting to feel the nerve running down my arm .it is also very uncomfortable to place my arm on a table or rest it on a ledge .my hand is very week .I'm just starting to be able to hold a pencil and write w out dropping it fifty times .I can't unscrew anything (jars)/(bottles)..soo one of my major concerns now...is after I get the emg electric nerve test in my arm I find out how far my ulnar nerve has regenerated.yes the Dr said very slow 1inch/month.the nerve was severed at my elbow.so Dr said it would take about 1 year to heal from my elbow down to my pinky.the second surgery sounds amazing ...he wants to skip all that space that's going to take so long to regenerate .he wants to go in near my wrist very close to my hand take nerve endings from other to nerves and fuse them into my ulnar nerve to bring my hand back to life faster.the length of nerve that is healing that he skipped over will regenerate at its own pace .but the half of hand and pinky and every other numb part will be braught back to life!!faster so the atrophy stops progressing and my nerve going farthest from the injury wit h is the pinky won't die ...what do you think?it very new this kind of surgery and not many orthos can preform it im very lucky to be so close to a Dr that can do this .The founding Dr that started this kind of nerve surgery with great success is Dr Susan mkennin.go on you tube and look her up .if you have time .search :Susan mkennin,pioneering surgery .once on that you'll see her other videos they are all very good to watch .it better explains this second surgery I will be having.the posterior interosseous I think is the one .ty ty for messaging back I had no idea somone would respond that quick

Butterfly53084
New Member


Date Joined Feb 2016
Total Posts : 5
   Posted 2/22/2016 9:50 AM (GMT -6)   
Also when your injury occured did you lose feeling in half of your hand ...get it back ..or have any paralysis?more surgerys?did you lose muscle tone and or gain it back?

pitmom
Veteran Member


Date Joined Jan 2015
Total Posts : 2407
   Posted 2/23/2016 7:16 AM (GMT -6)   
Hello again. As I said, the nerve was not completely severed. I suffered no muscle atrophy. I still have some numbness, burning/tingling. Pretty good strength. I had a consultation about a second surgery but at that time the possible benefit was only 30/70, not in my favor. I believe they were going to attempt to move the entire nerve again. It was not worth the risks for me.

If I place my forearm on a cold surface, my brain reads the signals as 'wet'. I can feel 'itch' but I cannot feel 'scratched'. This can lead to injury from scratching too much. I've learned to gently scratch the area but also scratch that area of the other arm as well. My brain accepts that information as 'satisfied'. Heat sensation is still read as hot, thank goodness. The pinky is still mostly numb to pressure, as is that part of the palm. The ring finger also has reduced sensation to pressure. Both fingers respond to signals going 'out' from the brain but seem to have difficulty with signals coming into the brain. I hardly notice it at this point.

I should point out that my left is my non dominant hand. I had gone to school for vocational training after this, studying to be a dental assistant, but I kept dropping the instruments as they are 'picked up' with the left pinky. Issues with my left shoulder injury kept me from being able to direct the overhead light system and x-ray arm as well, so I withdrew from the training.

Has the surgeon discussed both sides of the surgery? What complications can develop? I don't want to be a 'downer' but, in order to make such a decision both sides must be weighed. I understand that muscle wasting is not reversible and that you don't want it to happen but messing with the other nerves of the hand...just sounds so complicated and potentially dangerous. I've had denervectomies done on my right wrist, in an effort to keep ganglion cysts from forming, but it failed. Now, the back of the wrist is numb and I'm still getting cyst formations. I've had 3 surgeries on the right wrist and refuse any more. Only you can decide. So many innovations have come about since I've 'had my work done'.

Keep posting. Let us know how things are going, please.
multiple surgeries for rotator cuff both shoulders with residual chronic impingement syndrome, ulnar nerve transposition, carpal tunnel release, wrist ganglionectomies/denervectomies/tenolysis, multiple herniated discs, tarlov cyst, whiplash, bursitis of hips, tendonitis, torus, 3rd degree shoulder separation, torn labrum, ovarian cysts, fibroid tumors of the uterus

Akjalj
New Member


Date Joined Mar 2016
Total Posts : 1
   Posted 3/3/2016 11:43 PM (GMT -6)   
Butterfly,

My ulnar nerve was severed at the elbow in a car accident 5 1/2 years ago. I was stitched up, but the trauma dr. didn't notice the severed nerve. The pain, numbness, tingling, etc...drove me to follow up & I went to a orthopedic hand specialist who reattached the severed nerve almost a month after the accident. I was on 900mg/day of gabapentin & nucynta(narcotic) for the pain. After 5mo. learned the repair had essentially been ineffective. My hand & arm atrophied throughout this time & my surgeon recommended a interroseous nerve transfer of the median nerve to the motor branch of the ulnar nerve & I had the surgery 5mo. after the first surgery. I'm not gonna lie, the second surgery was much more difficult to recover from & more intense than I anticipated, but it was successful in that it help me to regain some of the atrophied muscles & my ability to regain more use of my hand. Over the last 5 years I have regained some strength & use of my hand, but there are just some things it can't do...still have numbness especially in the pinky & side of my hand, the pinky does claw, but I try to go about my daily activities & just have adjusted to the new ways I've had to learn to use it. I have not regained the ability to spread & close my finger & I have to help the pinky & hand along to keep it supple & as functional as possible. I wish I could tell you the pain has gone, but unfortunately it's still a daily challenge with varying degrees of pain & another aspect you just learn to cope with. I was on the gabapentin for 2 years & nucynta (narcotic) off & on over the same time frame, but hated the way they made me feel. I've opted for more natural methods including high b vitamins, essential oils & other 'herbal' medication to manage the pain. More recently I began Accupuncture & have found this combination approach has really been the best for the chronic pain. It's never gone away for me, some days are better than others, but it 'dials the pain down' enough for me to lead the active & healthy lifestyle I had before the accident...for the most part...I hope this helps, please feel free to ask any questions you may still have.

EvieD
New Member


Date Joined Apr 2016
Total Posts : 2
   Posted 4/11/2016 4:22 AM (GMT -6)   
Butterfly,
I severed my Ulnar nerve when I fell on a building site four weeks ago tomorrow, the accident happened 16 March 2016. My nerve was severed at my wrist when I fell on a steel frame carrying my granddaughter, it was a trip accident that has changed my life. I also had a deep cut above my elbow which involved muscle and also very painful.
I also cut two branch nerves and the artery in two spots, it is my dominate hand and I am 61 years old.
I am devastated by the accident but also very thankful that my granddaughter was not harmed in the incident.
I work part time in an administrative position but I am not sure I can sustain this. I went back last week, three weeks post accident, and really struggled but needed to get some normalcy back in my life. I am not sure where I am going and I am only just getting my head around the enormity of the injury. Medical advice has been to resume normal life as soon as possible, try to meet the challenges, adapt and move on - to me that makes the idea of recovery is surreal..........
I haven't grieved, I am not sure why, not a tear shed - but the pain is haunting.

Butterfly53084
New Member


Date Joined Feb 2016
Total Posts : 5
   Posted 9/1/2016 1:03 PM (GMT -6)   
So I haven't posted in a while.....I did have the interroseous nerve transfer done of the median nerve to the mother branch of my ulnar nerve done .in had this surgery done July 21 2016 ...the last surgery where they put my unabridged nerve back together was Nov 16th 2016.so my surgerys where 8 months apart .I can't say I see to much of a difference.my pinky and index claws more.everything I worked hard for to be able to do after the accident ...like spreading my fingers apart orstrength and gripping ...since this surgery I've had to kinda start over again.but I have had more sensations of feeling in my pinky index and half of my Palm of hand.my incision starts below my pinky on my palm..zigzag zago going down my wrist and down my for arm with a total of about 6 inches.they stitched the part in my hand with like 12 stitches and the the part going down my for arm was skin glued and sherry stripped with disolvable stitching underneath my whole incision inside ,your arm.like I said I had the surgery done July 21 and today I can still feel the sticking under my skin not quit dissolved yet.plus after I had the sherry straps and stitching removed some of the disolvable started poking through the surface of my arm .every thing going rally hypersensitive touching my skin .but I did getc a release to go back to work after September 8th.I'm not going to let this accident control my life ...I still go 4 wheeling ..pluck and dress my chickens and keep on keeping on..plus have three daughters 13 10 and 4 .I will keep posting to write about any progress ...oh yeah my muscle seems to be coming back ....be back in a month ..for any one new to this type of injury my best advice is to have patients ...very slow regenerating nerve.and also its never going to go back the way it was .in almost had to go through a grief process with coming to realization of what had happened ..I'm pretty much over it now still get bummed out once in a while.you don't move it up lose it!

EvieD
New Member


Date Joined Apr 2016
Total Posts : 2
   Posted 9/1/2016 9:16 PM (GMT -6)   
Good to see your update Butterfly. I am now 23 weeks post op, the
Atopic aspect of the injury has healed well although I continue to work very hard at physio to reduce the tightness and adhering of the scar tissue. I attend physio every week and work 3 times a day at my physio sessions myself. I apply a silicon dressing to the scar and bandage my hand every single night to flatten the scar. My biggest loss has been my fine motor and grip skills, I cannot hold a knife and therefore have no food preparation ability, my best friend is now my Victoranox serrated knife, which allows me to cut my food in a sawing fashion. I have gained some grip strength through physio but lack lateral strength & control. I am beginning to adapt to life with an impaired dominant hand, the pain remains basically unchanged. I feel the need to continually stretch out my hand and extend the ring and pinky fingers. I cannot write, use a child's grip aid on my pen & pencil, have worked on my signature. My typing speed has dropped dramatically but I continue to sustain my position in administration working 3 days a week. However I would be lying if I said I had moved on, there are some days the whole thing just does my head in! Looking forward to hearing more about yours and others progress.

pitmom
Veteran Member


Date Joined Jan 2015
Total Posts : 2407
   Posted 9/19/2016 4:39 PM (GMT -6)   
Butterfly and Evie, thanks for the updates. Hope things continue to improve for both of you.
multiple surgeries for rotator cuff both shoulders with residual chronic impingement syndrome, ulnar nerve transposition, carpal tunnel release, wrist ganglionectomies/denervectomies/tenolysis, multiple herniated discs, tarlov cyst, whiplash, bursitis of hips, tendonitis, torus, 3rd degree shoulder separation, torn labrum, ovarian cysts, fibroid tumors of the uterus

V d
New Member


Date Joined Feb 2017
Total Posts : 8
   Posted 2/16/2017 8:11 AM (GMT -6)   
Hey guys october 2016 me and my boyfriend got in an argument, long story short he hit me with a glass bong (smashed it on me) i shielded myself with my left arm , and it cut me, i immediately lost feeling in my pinky ring finger and part of my hand, i went to the er and got stitched up to leave, from october2016- february 2017 i searched for answers while waiting to see a specialist only for him to tell me it would heal and ill be fine, i felt like something wasnt right and he didnt know what he was talking about, longer story short i couldnt wait anymore, my mother in mexico found an expert ortho surgeon who offered help, i got on a bus from los angeles to mexico and had surgery feb 13 he told me time was ticking because it was almost four months, turns out it was bad i was missing about two inches of ulnar nerve, he took sural nerve from behind my leg and fixed it at the elbow .(injury) he told me it would take to long for the nerve to reach my hand so he also operated me near the wrist to connect nerve to the ulnar nerve to bring my hand back to life.. during the nightmare of three months besides always fighting with my bf and crying everyday because i didnt know what was wrong i lost sensation on my left hand ring finger and pinky the pinky also clawed but i could move them with very little coordination the part under both fingers of my hand also lost sensation, my fingers were begging to cramp and become locked the more i used my hand, i am now recovering from surgery, i had both surgeries same day by the wrist and the repair, how long did it take for you guys to recover from the wrist surgeries to connect new nerve to the ulnar nerve?? Do you guys feel better now? This has been a very traumatic event for me , now im hoping time heals me not just physically but emotionally, praying everything will be ok. Im 22 male btw, since im still young im sure ill recover

pitmom
Veteran Member


Date Joined Jan 2015
Total Posts : 2407
   Posted 2/16/2017 5:11 PM (GMT -6)   
Hello V d. Welcome to the forum. You've posted on an older thread that has been inactive for months. You might want to start a new thread as an introduction.

I'm so sorry to hear of your situation. Hopefully, your surgery will give you back nerve function.

As stated in the previous posts, nerves are tricky and take quite a while to heal and regenerate. Are you seeing a hand physical/occupational therapist? I doubt I would have as good a result if I hadn't.

As for the other part of your situation, I sympathize. I hope the two of you have found a better way to communicate before things escalate to violence. NO ONE should EVER strike another. YOU are worth more!
multiple surgeries for rotator cuff both shoulders with residual chronic impingement syndrome, ulnar nerve transposition, carpal tunnel release, wrist ganglionectomies/denervectomies/tenolysis, multiple herniated discs, tarlov cyst, whiplash, bursitis of hips, tendonitis, torus, 3rd degree shoulder separation, torn labrum, ovarian cysts, fibroid tumors of the uterus

V d
New Member


Date Joined Feb 2017
Total Posts : 8
   Posted 2/20/2017 7:45 PM (GMT -6)   
Butterfly53084 said...
So I haven't posted in a while.....I did have the interroseous nerve transfer done of the median nerve to the mother branch of my ulnar nerve done .in had this surgery done July 21 2016 ...the last surgery where they put my unabridged nerve back together was Nov 16th 2016.so my surgerys where 8 months apart .I can't say I see to much of a difference.my pinky and index claws more.everything I worked hard for to be able to do after the accident ...like spreading my fingers apart orstrength and gripping ...since this surgery I've had to kinda start over again.but I have had more sensations of feeling in my pinky index and half of my Palm of hand.my incision starts below my pinky on my palm..zigzag zago going down my wrist and down my for arm with a total of about 6 inches.they stitched the part in my hand with like 12 stitches and the the part going down my for arm was skin glued and sherry stripped with disolvable stitching underneath my whole incision inside ,your arm.like I said I had the surgery done July 21 and today I can still feel the sticking under my skin not quit dissolved yet.plus after I had the sherry straps and stitching removed some of the disolvable started poking through the surface of my arm .every thing going rally hypersensitive touching my skin .but I did getc a release to go back to work after September 8th.I'm not going to let this accident control my life ...I still go 4 wheeling ..pluck and dress my chickens and keep on keeping on..plus have three daughters 13 10 and 4 .I will keep posting to write about any progress ...oh yeah my muscle seems to be coming back ....be back in a month ..for any one new to this type of injury my best advice is to have patients ...very slow regenerating nerve.and also its never going to go back the way it was .in almost had to go through a grief process with coming to realization of what had happened ..I'm pretty much over it now still get bummed out once in a while.you don't move it up lose it!




Hey butterfly i posted her cause i got the same surgeries as u did the trasnfer from medial to ulnar nerve how did u feel after the surgery?? My hand is still very weak and im feeling strong pulses on my pinky and index finger im praying this doctor did it right, did u feel the same thing if so how long did it take to fo away u said u have more sensation now how l Ng did it take for everytjinfto dial down my fingers still cant streth out all the way i was able to do that before ugh im so worried olz respond hun

V d
New Member


Date Joined Feb 2017
Total Posts : 8
   Posted 2/20/2017 7:51 PM (GMT -6)   
pitmom said...
Hello V d. Welcome to the forum. You've posted on an older thread that has been inactive for months. You might want to start a new thread as an introduction.

I'm so sorry to hear of your situation. Hopefully, your surgery will give you back nerve function.

As stated in the previous posts, nerves are tricky and take quite a while to heal and regenerate. Are you seeing a hand physical/occupational therapist? I doubt I would have as good a result if I hadn't.

As for the other part of your situation, I sympathize. I hope the two of you have found a better way to communicate before things escalate to violence. NO ONE should EVER strike another. YOU are worth more!
thnx pitmom reason i responded here was cause butterfly and ankj bith had the same procedures as me

V d
New Member


Date Joined Feb 2017
Total Posts : 8
   Posted 2/20/2017 8:04 PM (GMT -6)   
Nd yes im going to talk to my doctor on the 27th about that, pitmom do u know anything about that interroseous nerve transfer?

pitmom
Veteran Member


Date Joined Jan 2015
Total Posts : 2407
   Posted 2/20/2017 8:40 PM (GMT -6)   
I'm sorry, no, I didn't have a procedure like that. My nerve was severely damaged, but not severed, back in 1996.

I hope your doctor has some good news for you on the 27th. Please let us know how it goes.
multiple surgeries for rotator cuff both shoulders with residual chronic impingement syndrome, ulnar nerve transposition, carpal tunnel release, wrist ganglionectomies/denervectomies/tenolysis, multiple herniated discs, tarlov cyst, whiplash, bursitis of hips, tendonitis, torus, 3rd degree shoulder separation, torn labrum, ovarian cysts, fibroid tumors of the uterus

V d
New Member


Date Joined Feb 2017
Total Posts : 8
   Posted 2/21/2017 12:07 AM (GMT -6)   
U hvent posted anymore, i had the inter surgery my hand is pulsing a lot 1 week after is that normal???

Akjalj said...
Butterfly,

My ulnar nerve was severed at the elbow in a car accident 5 1/2 years ago. I was stitched up, but the trauma dr. didn't notice the severed nerve. The pain, numbness, tingling, etc...drove me to follow up & I went to a orthopedic hand specialist who reattached the severed nerve almost a month after the accident. I was on 900mg/day of gabapentin & nucynta(narcotic) for the pain. After 5mo. learned the repair had essentially been ineffective. My hand & arm atrophied throughout this time & my surgeon recommended a interroseous nerve transfer of the median nerve to the motor branch of the ulnar nerve & I had the surgery 5mo. after the first surgery. I'm not gonna lie, the second surgery was much more difficult to recover from & more intense than I anticipated, but it was successful in that it help me to regain some of the atrophied muscles & my ability to regain more use of my hand. Over the last 5 years I have regained some strength & use of my hand, but there are just some things it can't do...still have numbness especially in the pinky & side of my hand, the pinky does claw, but I try to go about my daily activities & just have adjusted to the new ways I've had to learn to use it. I have not regained the ability to spread & close my finger & I have to help the pinky & hand along to keep it supple & as functional as possible. I wish I could tell you the pain has gone, but unfortunately it's still a daily challenge with varying degrees of pain & another aspect you just learn to cope with. I was on the gabapentin for 2 years & nucynta (narcotic) off & on over the same time frame, but hated the way they made me feel. I've opted for more natural methods including high b vitamins, essential oils & other 'herbal' medication to manage the pain. More recently I began Accupuncture & have found this combination approach has really been the best for the chronic pain. It's never gone away for me, some days are better than others, but it 'dials the pain down' enough for me to lead the active & healthy lifestyle I had before the accident...for the most part...I hope this helps, please feel free to ask any questions you may still have.

AJ110
New Member


Date Joined May 2018
Total Posts : 4
   Posted 5/6/2018 1:44 PM (GMT -6)   
Seeking a little guidance.

I am in 7 months with an ulnar nerve injury which happened in January 2018 due to a bad fall which resulted in either a glass that cut the ulnar nerve above the elbow towards the hand.

MRI reports show it has been cut but after doing a surgery for nerve exploration/repair it was compressed with scar tissue and this was removed and I am now experiencing sever pins and needles and a ZING which has also increased from the cut area towards the wrist when I tap on. Pins and needles get worse at night and my pinky and ring finger are still crawling with no fine movements and 10% of sensitivity after the surgery which was done in May, 2018. Surgery was done by an orthopedic hand surgeon.

I went to see a neurologist and neurosurgeon for a second opinion first week of July, 2018 and repeated an ultra sound and second EMG test which are negative and show no signs of the ulnar nerve firing through the muscles. Ultra sound still shows that ( Neuroma growing from the ultra sound reports and no continuity either for the ulnar nerve but not painful as yet) although a scar tissue was already removed in the first surgery they still suspect some fibers have connected that's why I started getting pins and needles and more zings after the surgery.

Neurosurgeon recommends to do a AIN surgery to super charge the ulnar nerve motor components near the wrist towards the palm to get motor and strength function back.

Neurosurgeon also doesn't want to go back inside to the initial cut to remove the Neuroma because he thinks it will only take away the little sensation I have been getting and start all over again.

Has anyone done this type of a surgery? how are the pains after surgery? Recovery time? will it make my case worse then it is already? I am little confused whether if this will ever recover again or is it worth doing the AIN surgery. I was advised by the Neurosurgeon that he can only make it better and my right hand will never be 100% again.

thank you,

Ali

Post Edited (AJ110) : 7/9/2018 10:24:33 AM (GMT-6)


V d
New Member


Date Joined Feb 2017
Total Posts : 8
   Posted 5/6/2018 1:58 PM (GMT -6)   
Hey aj110 i couldnt really understand ur post, did you get any surgeries yet? Weve all had the same injury that you are describing. However it seems like im the only person active on here.

V d
New Member


Date Joined Feb 2017
Total Posts : 8
   Posted 5/6/2018 2:14 PM (GMT -6)   
Just a warning to anyone new that stumbles into this forum let me put my update almost a year after my injury. I had an ain nerve transfer and repair nerve graft last year FEBRUARY 2017 i noticed complete connection from the proximal to distal nerve graft for the first time in november 2017 about 9-10 months after surgery, basically i felt a current/ chisp/ connection from one side to the other but it only lasted for 1 day and stopped after that i waited december january FEBRUARY (2018 noe 1 year aftet surgery and 1 year 4 months after injury) hhad a nerve test and they told me my nerve is basically screwed cause the test showed not much improvment so i guess it was a failure for me and they told as of now im disabled it sucks and i now have a hand that feels numb all the time sad i am sad an ddepressed and it hurts because the person i loved so much with my heart did it to me amd now basically acts like i dont exist. But anyways all our bodies are different and we heal differenlty what affected me was the timing 4 months was too much for andit should have been done faster. Thats what happens when u have medical gov insurance sad but anyways MY SUGGESTION DO NOT GET THE AIN NERVE TRANSFER I HAD IT DONE AND IT FEELS HORRIFIC I HAD TO BEG MY DOCTOR TO TAKE IT OFF BECAUSE I HATED IT SO MUCH IT DOES NOT FEEL NATURAL AND IT LEAVES UR HAND WEAKER/ LESS BENDABLE DONT DO THE NERVE TRANSFER JUST DO THE NERVE GRAFT PEOPLE IT DOESNT REALLY MAKE A DIFFERENCE THESE DOCTORS JUST WANT UR MONEY THE AIN NERVE TRANSFER WAS A BIG NO NO FOR ME. So yeah basically conclusion 1 year after surgery didnt seem to work, it did work for 1 day but stopped feeling any type of regeneration after that seems likebthe shwan cells got lost or maybe my nerve graft was not to the best of its ability anyways im sad af im now 24 and this sucks bad. Pray for me sad im hoping a miracle happens. My left hand is now totally devasted clawed and lost so much muscle. But i prefer it to feel like this than with the nerve transfer. I had a rough 2017 and stupid me i still miss the person who did this to me but i dont exist in his world life is cruel good luck people if for some reason im no longer on this earth its because this injury really took a chunk of my soul. idea

pitmom
Veteran Member


Date Joined Jan 2015
Total Posts : 2407
   Posted 5/6/2018 8:23 PM (GMT -6)   
I'm so sorry to hear you didn't get a good result from your procedure.

I remember when all of my various surgeries and other medical conditions lead to me being declared 'disabled from work'. I, too, nearly gave up.

I sought professional help. Depression with suicidal ideation was just one of several diagnosis. One other was 'body dismorphic disorder'...I hated my hands, my arms, my scars...I felt 'betrayed' by my body.

A combination of medication and making use of a counselor helped me so very much. I'm not 'cured' so much as I am more stable and have reached a better level of acceptance.

On the surface, we don't 'look' like our disability should be so 'devastating'...but beneath the surface...that's where the other 'damage' is. I sincerely hope you will seek counseling for this part of the injury...the one to the psyche...it, too, needs care and healing.
multiple surgeries for rotator cuff both shoulders with residual chronic impingement syndrome, ulnar nerve transposition, carpal tunnel release, multiple wrist surgeries, multiple herniated discs, tarlov cysts, whiplash, bursitis of hips, grade 5 right shoulder separation and torn labrum, ovarian cysts, fibroid tumors of the uterus

Sarge 83
Regular Member


Date Joined May 2018
Total Posts : 22
   Posted 5/13/2018 11:03 AM (GMT -6)   
I feel bad for everyone and I am in the same position. Early this year on the 15th February I started to feel tingling and numbness in my right hand and the ring and pinky finger's.
I saw a Neurologist one week later and said it was in my head. So the numbness got worse and I saw a second Neurologist who did nerve conduction studies and sent me for an ultrasound. The nerve conduction studies revealed ulnar Neuropathy and the ultrasound revealed a compression at the elbow. I had a cortisol injection the same day on the ultrasound. Two weeks later I had a MRI of the elbow and showed arthritis aswell.

I was needing surgey as there was no other way as my compression was so severe I lost muscle In the forearm hand and could not do my shoelaces buttons or use a knife or fork.
I am now two weeks exactly one post surgey and I have had a transposition of the ulnar nerve under the muscle and am Anterior interosseous nerve transfer end to side in my forearm.
I do not feel any different I have all the same symptoms as before and I am waiting to see if this will make any difference. My surgeon said it has helped alot of people but what is helped exactly? I am trying to be optimistic although reading these stories makes me very scared.
Is there anymore input into recovery from this?

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16804
   Posted 5/13/2018 1:12 PM (GMT -6)   
Hi Sarge & welcome to the forum. This can be a difficult surgery to recover from & a long one. Two weeks post op, no you will not see improvement. You are fresh from surgery. Do not be a bit surprised if it takes a full year for the nerves to heal. The nerves heal at their own pace, not like a typical surgery that heals much sooner. Try not to get discouraged instead practice patience. Follow your post op instructions to the letter. Do not be afraid to ask your dr questions.

Hopefully you will be one that has a good result. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

pitmom
Veteran Member


Date Joined Jan 2015
Total Posts : 2407
   Posted 5/13/2018 4:15 PM (GMT -6)   
Sarge, I had my ulnar nerve transposition, sub muscular, back in 1997. While I still have some numbness and tingling with the occasional 'bad day'...all in all it has gone quite well. It takes time! Nerves regenerate slower than skin. Are you doing physical therapy? This, I think, made all the difference for my outcome.
multiple surgeries for rotator cuff both shoulders with residual chronic impingement syndrome, ulnar nerve transposition, carpal tunnel release, multiple wrist surgeries, multiple herniated discs, tarlov cysts, whiplash, bursitis of hips, grade 5 right shoulder separation and torn labrum, ovarian cysts, fibroid tumors of the uterus

Sarge 83
Regular Member


Date Joined May 2018
Total Posts : 22
   Posted 5/13/2018 7:23 PM (GMT -6)   
Thank you Susie I hope that too.
I have followed what the hand surgeon has said but everyone has told me something else. The hand surgeon says minimum 3 month's for the hand one Neurologist says I'm probably still compressed another Neurologist says it's 6months and I've even had a plastic surgeon that says this operation doesn't really work and my response is why is it offered then? Of course I had no response.

Pitmom this is so hard to be patient with I know it's what I must do but the double surgery is what has made this hard, even though I am out of the sling it's not any easier and I'm just suffering waiting thinking will it or won't this work. My hand surgeon said he had never seen anyone have such quick deterioration In 2months from just compression.

I've looked at stemcell therapy already and I am doing LED laser for scaring. The physiotherapy did start but it's useless cause I have no signal to my hand as yet so it's like it was preoperative.
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