Posted 6/28/2016 9:03 AM (GMT -7)
I actually live in central Scotland, where we have our National Health Service (NHS) and am being treated in Edinburgh. Private care because of the extreme cost is not an option and as I have never had private insurance with work and to be fair have had fairly good health all my life it wasn't something I considered. In hindsight, how useful would it be at this point? However, at this stage even if a company would consider me for insurance purposes my current problem wouldn't be covered, for obvious reasons.
The doctor treating my has very good credentials, in so far as my limited knowledge goes, but I have to admit I am not happy about the vagueness of his diagnosis and explanations at the moment.
Pre surgery I was told he would see me in his clinic 6 weeks post op as this was standard. Post op, in HDU, he told me all was ok, and there were no complications. I waited at home for my 6 week appointment and at 5 weeks called to chase it to be told it would be more like 10'weeks. I then got an appointment through for 16 weeks to then have a revised appointment for 19 weeks post op.
This, I'm afraid, is entirely normal to have in our NHS as we are monitored by our GPs. I am lucky in that I have a good GP who initiated this whole investigation and I also returned to seeing the physio (NHS too) that I was seeing pre op. The physiotherapist actually discharged me whilst waiting on my initial MRI results, which incidentally got 'lost in the system', hence why I ended up being emergency op. Hey ho! Definitely not a straight forward case am I?
I also have not only pain all up my arm, into my underarm and around my shoulder and at the back of my neck, but have now got shaking (albeit alight, and not always) back in my hand as well as weakness in my grip. My leg also takes frequent spasms and although not particularly painful I have a limp like a kind of sciatica type reaction in the leg (although not sciatica as I've had that when pregnant and know what it feels like and it's not like this). I also have tingling, pins and needles and numbness all down one side of my face, (again, intermittent but consistently since before my op which I thought was coming from the neck issue), as well as a blurry eye and the sensation of a runny eye despite it being dry.
Crikey, reading it over I sound fit for the rubbish bin, lol!
All of the symptoms described in the previous paragraph I mentioned to the consultant and his only explanation was that it wasn't coming from the c5/6 level pressure and that wasn't what he was concentrating at the moment. Stupidly, I ran with it and concentrated on the discussion on the pressure still occurring and forgot to ask what then would be causing the rest of the symptoms and what would be done to establish cause? Something I will remember to ask the GP when I'm next in as I'm due to see her before the consultant gets back to me with his discussion conclusion.
And at my next consultant visit I will be sure to take someone in with me to ask the questions I stupidly forget to ask!
It would also be good to hear if remaining pressure is something that someone has had, and left alone and been able to live with without it getting any worse. (I've probably asked this before, apologies if I'm repeating myself).
And, even if anyone has any thoughts as to what I should be asking in order to get some better answers?