As I said before some drs replace everything. Apparently nothing is showing up on the computer that makes them think the pump is not working correctly, which then would mean a catheter problem. Do you think this dr is competent enough to be able to tell if there is a crack in your catheter. It boils down to what you are comfortable with. I do know when the battery dies in the pump & it has to be replaced they don't always change the catheter out, again depends on the dr.
If it comes down to going to Indy, do you really think your dr will make your referral? If he doesn't your PCP can do it. Even with drs making referrals to them it still takes quite some time to get an appt.
Yes, I do know all too well the pain you are talking about
. I have been with this worthless pump well over a year now. I am hoping to have it changed in June, or July the latest. In the meantime I do everything I can to distract myself so I don't think about
how miserable I really am. I learned when I was much younger that distraction is one of the best tools to have to help battle pain. If you have not tried it, try adding a couple of Ibuprofen to your BT meds, sometimes it is recommended by PM drs.
Did you have back surgery & end up with CP or what? Hang in there.
Post Edited (straydog) : 5/18/2016 10:25:07 AM (GMT-6)