Medtronic Pain Pump and Chronic Pain

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IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/7/2016 11:26 AM (GMT -7)   
Straydog,

One other question:
Have you know of anyone that had to write a letter to the DR about an issue like this or any similar?

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/7/2016 11:35 AM (GMT -7)   
I almost forgot, you mentioned a certain way to mail this letter to the DR. What did you call that and what do I need to do?

Lynnwood
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Date Joined May 2005
Total Posts : 7550
   Posted 6/7/2016 12:21 PM (GMT -7)   
I would wait till Thursday morning. That gives her 48 hours from close of business Monday thru close of business Wednesday, which is more likely what her message really means.

Or maybe even Friday morning, even though I know this is aggravating.

straydog
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Date Joined Feb 2003
Total Posts : 15303
   Posted 6/7/2016 12:33 PM (GMT -7)   
Yes, this has happened before. I was waiting on a referral to a specialist & phone calls got me no where. So, I wrote a letter to the dr asking what was going on. He had no idea there was a problem getting the referral made.

I sent the letter certified mail, return receipt requested, marked personal & confidential on the envelope. I suggest putting your address only on the envelope not your name. If this were me & you don't have a call back by close of business Wed.., this letter would be mailed on Thursday. You are getting close to the 8 week mark of waiting thats just not right.
Susie

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/8/2016 7:16 AM (GMT -7)   
Lynnwood,

I agree with you. I will wait till Thursday morning to call this nurse again and ask: if she has heard back from my insurance co. and the hospital about my surgery date.

Lynnwood, I truly appreciate your input

Thank You

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/8/2016 9:12 AM (GMT -7)   
I will be stressed when I make the call tomorrow, so I will write out what I'm planning on saying to her about my surgery date.

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/8/2016 11:38 AM (GMT -7)   
Straydog,

Update:
I just got a call from the PM DR's nurse. She was in a very good mood and nice to me. She said that since the DR was on vacation last week, he is behind on my dictation (for my surgery). I told her that I'm really excited about going into surgery and getting my pump and catheter replaced. The nurse said that she will make sure that he completes my paperwork, he will be in the office tomorrow. The nurse said that it has been a long time for me.

I was happy that I got a call back from this nurse. But now I have another wait on my hands. Wow, this wait is really hard on me.

I was so stressed out last night that I had to call my therapist (at his home). I was upset because of not knowing anything or not getting a call back.

I hope that I can get some rest tonight

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/9/2016 6:35 AM (GMT -7)   
Straydog,

Now since I received a call back from the PM DR's nurse. I'm still back to waiting. I hope this doesn't take much longer. I'm trying NOT to let this get me down (as you said). My pain meds aren't working so well anymore and I'm sure hoping the date for surgery is soon. I tried to use ice to help with my back pain as before but that now doesn't seem to help me anymore or heat either. Now I'm in the less active mode and just sitting trying to not aggravate my back pain anymore than necessary. I will take your advice and sit outside and enjoy the weather etc... I'm not up to driving much except to the nearby grocery store and home.

I want to thank you for those suggestions. I will put them to use

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/10/2016 5:58 AM (GMT -7)   
I have a question on how the scheduling process for surgery works.
What is the sequence on what has to be done in order to get me on the OR table to remove my old pump and catheter. I was told by the DR PM nurse that the doctor needs to finish up his dictation about me to get things going.
So, what is the process after the "Dictation?" Who moves it forward from there? His nurse or does a office person follows up with that paperwork? Does that "Dictation" go to the insurance company for approval? How long does that take? Does the hospital need to approve it too? Is Medtronic also informed and need to have a rep present for the surgery? How long does all this take to do and get approval?
Once the doctor finishes his dictation to the time I get inside the OR is how long? Weeks or Months? Any Idea?

I'm sorry to bother you and others with my questions, but I am trying to find some positive viewpoints to help me deal with this pain.

Any ideas would be greatly appreciated

Thanks

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15303
   Posted 6/12/2016 4:59 PM (GMT -7)   
Indiana, each drs office has their own protocol on how they do things so I cannot answer your questions on what the standard procedure is for his office. Today insurance companies work off of CPT codes, each code stands for a diagnosis or what procedure was done & that sort of thing. Does your insurance require something in writing for a surgical procedure, I don't know. Yes, when they schedule your surgery the hospital also gets approval otherwise its cash up front or the surgery is canceled. The drs office has to notify Medtronics rep so he can bring a pump.

Some offices has a person in house that types all dictation or they can send this work out. If the insurance needs it in writing the letter can be faxed to them rather than mailed.

Do you remember how long it took after your trial to get everything approved to have your pump implanted? Should be the same time frame I would think.
Susie

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/13/2016 8:58 PM (GMT -7)   
Straydog,

My therapist told me that I need to call the PM nurse tomorrow (Tuesday) and ask if she has heard anything about a surgery date for me yet? My wife said the same thing. I'm a little nervous about this, but I know if I don't do it I could be put on the back burner - waiting for a date. I don't want to get this nurse mad either because she could cause me problems with the DR. I am asking for your thoughts regarding this dilemma. This nurse has only heard from me once last week when I left a voicemail and she returned my call 48 hrs later. The only time that I had any communication with her was 4 weeks before that during my last office visit. I have not talked to her directly in a while. I think that I average between once every 4 to 6 weeks or longer. I really don't want to be put on the bottom of the pile, but I need to get this surgery done soon. I have been in pain since last Thanksgiving when my pain pump/catheter failed.

Your thoughts would be greatly appreciated.

thank you

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7550
   Posted 6/14/2016 11:54 AM (GMT -7)   
As I recall, in your last conversation with this nurse she said everything was waiting on the Dr to finish his dictation.

I would probably call and ask if (1) the Dr is making any progress, and (2) if there is anything you can do to help him along. Then, (3) mention how long you've been in pain and (4) that you are really doing poorly because of the pain. (5) Thank her so much for her help, and (6) please let you know if you can do anything to make this easier.

Just my two cents.

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/15/2016 11:43 AM (GMT -7)   
Lynnwood,

Thank you for your suggestions. I will put them to good use.

Derwood
Regular Member


Date Joined Jun 2016
Total Posts : 294
   Posted 6/16/2016 7:33 AM (GMT -7)   
Hi IndianaBoy.

I hope that you get some relief soon. I have read your entire thread, and can relate to your need to get things fixed up ( new pain pump)
as soon as possible. Waiting can be very difficult , especially when pain is involved. I think you mentioned that you were going to get into some on line games to help pass the time? Andy86 suggested it to me recently , and I plan to start today. Just wanted to say hello and wish you well.

Derwood.

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/17/2016 9:43 AM (GMT -7)   
Hello Derwood,

It's very nice to meet you.

Thanks for your response

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/17/2016 8:34 PM (GMT -7)   
Derwood,

Your are exactly right, waiting is very difficult. It so hard to be positive when pain is involved. My PM DR told me 4 weeks ago that he would do the surgery (I was very happy to hear that) and I'm still waiting for a OR date. I called last week and found out that he had not done the dictation for me yet. Then I called this week and the status is the same. I talked to one of the OTHER nurses (who is really Great) and she told me that she would send him another reminder about my dictation work and she would reprint the paperwork for him to complete. This nurse told me that she has sent a couple of other reminders in the last couple of weeks but the dictation was not completed, yet. I asked her if he was mad at me or did I do anything to upset him. She laughed and said "No, he has a pile of paperwork to complete that is sitting on his desk." This particular nurse told me that she would let me know as soon as he gets my dictation done. Well that was Weds and it now Friday night with no phone call. I hope that he get my paperwork done in the next day or so, then they can submit it to both the insurance co. and hospital to get things going. I need to tread lightly with the DR so I don't jeopardize my surgery. I pray everyday hoping that this DR will move forward and do the surgery on me, soon - very soon!!

I'm trying to be positive, but its very hard to do.

thanks for listening

Derwood, I hope you are enjoying your online games.

Derwood
Regular Member


Date Joined Jun 2016
Total Posts : 294
   Posted 6/18/2016 7:35 AM (GMT -7)   
Thanks for the warm welcome/greeting IndianaBoy :) Sorry ; took me several posts to notice that Indiana does not have three n's ....
Speeling has never been my strongest suit.

I agree on the waiting part. It is terrible. And you are in pain for months... Rest well assured that all forum members are rooting for you , and I for one await the happy day when I read your post that says your problems have been solved ( post surgery, I expect ) and
your pain pump is FINALLY working correctly again.

I try to be possitive too , but lately it has been a struggle. Infact yesterday was a very low day for me mood-wise ; I didn't get on line to play some games because my mind was worrying so much about other things. Today I'm feeling better ( but not great ) , and the sun is out and the day is warm.

Anyway , I am rooting for you IndianaBoy. I hope your day is a little brighter than it was yesterday...you have yet anouther day off
of the wait. I can truly empathize about the difficulty of waiting , as I am in the waiting game too ( I have been waiting a year to see a rhuematologist , and am not scheduled to see him until Jan 2017.

Hoping you get good news next week ;

Derwood and Lupin ( Lupin is my beloved cat...

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/19/2016 5:14 PM (GMT -7)   
Derwood,

Thank you for your responses. Everyone that has responded to my posts are really GREAT and I want to thank everyone for their support and words of encouragement for my situation.

(Seashell)
Veteran Member


Date Joined Dec 2012
Total Posts : 679
   Posted 6/21/2016 6:34 AM (GMT -7)   
Indiana Boy:
This is my first response to your thread, which I have been reading and following with interest.

Your pain management physician is neglecting of his care to you. His continued delay in completing the dictation and insurance approval for the surgery to replace your pain pump and connecting catheter(s) is patient neglect.

If the tables were turned - if your pain management physician was in the position of being the patient - how would he feel?

There is a reasonable time provision for a physician to complete ancillary documentation of a patient's record. And your pain management physician has exceeded any reasonable time period.

His lack of follow-through in documentation is affecting your overall health and well-being - both physical and psychological.

Do you have a primary care physician who could contact your pain management physician to advocate on your behalf? A MD to MD conversation, to nudge your pain physician.

Your pain management physician's continued delay is not OK.

You wonder how your pain management MD manages to pay his monthly bills at home? Electricity? Water/sewage? Cable TV? Mortgage? I hope he is better organized at home then he is at the office.

I hope better for you,
- Karen -
Pituitary failure, wide-spread endocrine dysfunction
Addison's disease
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/21/2016 2:42 PM (GMT -7)   
Seashell,

I talked with my wife and she reminded me that we did talk with my family doctor about this issue. My family doctor was aware of my PM DR almost dropping me as a patient for calling one of his associates (about my pain) and showing up to the emergency room for my chronic back pain. So, my family doctor told me that he was the only PM DR that was able to manage my pain with a pain pump and that I should stay with him to get this fixed. She (my family doctor) told me that she won't intervene for several reasons (one being that the PM DR won't think kindly of her getting involved) which could make matters worse for me. She told me to hang in there and let him fix me. She (my family MD) said that she does not know him personally and that her getting involved my not do anything for me. My family doctor really do not want to get involved with this. I called my therapist today and talked to him about your comments and he too said that my family doctor would not want to get involved in problems like this. My therapist also said too that this might cause my PM DR to drop me as a patient. My therapist said that he agrees that this is unfair but with doctors in this field they are always over booked and are behind.

So, In the meantime like your said earlier his (PM DR) delays are affecting me both physically and psychologically.

What also bad is that the pain meds I'm on are not working very well anymore. This PM DR won't give me anything stronger either. I have asked several times.

So, I suffer
I can only hope that he starts and finished the dictation on me. I pray everyday asking GOD for this PM DR to finish the paperwork and do my surgery ASAP.

I do have a advocate though - it is one of the nurse's in the PM office (she is the only one who cares and knows my situation) I know that there is only so much she can do, but she tries by sending email reminders to the PM DR. As for the other nurse, I am wasting my time (she does not like me or want to help me). This nurse is almost always rude to me.

PS, my therapist told me to just preoccupy my mind with other things, so I try.

Anyway, thanks for listening

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/21/2016 3:52 PM (GMT -7)   
I also have to add, it is easy for someone to say to "just preoccupy your mind on other things" when the pain is unbearable. It is very hard to sleep and/or do other things even driving when you are trying to manage the pain. It is very hard to not cry at times.
I hope I get my surgery soon!!!

(Seashell)
Veteran Member


Date Joined Dec 2012
Total Posts : 679
   Posted 6/22/2016 4:52 AM (GMT 0)   
IndianaBoy:
I recognize that you are in a pickle.

But I have to wonder how you can trust that this pain management MD will focus and attend to do his utmost best in performing surgery on you to replace your pump and catheter(s)?

The pain management MD is repeatedly showing a callous disrespect for you as a patient. He is putting you at the bottom of his "To Do" file. Obviously, it does not take 4+ weeks to complete dictation of an office visit that you had with him.

How is it that this MD would have dropped you as a patient because you contacted his partner/associate and showed up in the ER? What was your error/fault that would have prompted your dismissal as a patient?

I will admit that I am not a patient of a pain management physician. I am not aware of all of the fine details of compliance with contracts. But I certainly do see in your pain management physician a physician who has an undue level of power/control over you.

You are this physician's patient. He works for you.

I see red lights that are flashing "warning."

Do you not have any other avenues or other pain management clinics to access?

I would never choose to stay with an MD the way that this pain management MD is treating you.

The whole situation that you are enduring is wrong. It's just plain wrong.

From my point of view, your primary care MD is coping out. He/she is obviously intimated by the pain management MD.

I have had my share of inept physicians. Poor physician care has altered the course of my life. As such, I have vowed from here on in that I will run . . not walk, but run with full speed . . . out of any MD's office who treats me with less than proper care.

Do you trust that this pain management MD will be focused to do his best by you once you are in surgery?

Can you image if your pain management MD treated all of his patients the way that he is treating you? Neglecting necessary dictation by 4 plus weeks. Feeling as though you have to walk on egg shells to talk to the office registered nurse. The answer: The pain management MD would have an empty office waiting room. No one would be coming to him. He would have no practice.

I do not know what I have accomplished in my writing to you. I hope something is of value in helping you.

What is happening to you is just not right. Period.

You are a human being, with a life and responsibilities. Your pain pump and catheter replacement need cannot be compared to a person waiting on a plumber to repair a broken washing machine. Even then, I think a person would get faster response by a journeyman plumber to repair a broken washing machine then you are encountering with your pain management MD.

Stay strong.
- Karen -

IndianaBoy
Regular Member


Date Joined May 2016
Total Posts : 45
   Posted 6/22/2016 5:45 AM (GMT -7)   
Good News:

I finally received an update from the PM nurse telling me that paperwork is done and in process.

Thank You JESUS!!!

One more hurdle down and several more to go.

Derwood
Regular Member


Date Joined Jun 2016
Total Posts : 294
   Posted 6/28/2016 8:04 AM (GMT -7)   
Hi IndianaBoy :)

I have been away from the forum for a few days ( no wi-fi at my
little getaway ) and just read your last post. So glad things are moving along for you.

Derwood

Roni123
New Member


Date Joined Apr 2017
Total Posts : 8
   Posted 4/11/2017 2:43 PM (GMT -7)   
Susie, this is so frustrating trying to find you, so sorry, but I don't want to miss any communication I have Requested a way to get your replies just got back to this pg after hours of searching ,
How do I find you? This is Roni, again my apologies not very tech
Savvy......oh I see my name here on the bottom , just need to find this forum???
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