Posted 5/23/2016 6:29 PM (GMT -6)
Okay, finally! I've found somebody with some issues similar to mine. This is the second post I've made on this site today, and I've just joined today. I'm a chatty person. But, I have an SCS which I don't believe is working for me. It was implanted on April 1, 2015 and after four reprogrammings, they still can't it the area where my pain is, which is the middle of my lower back. First, let me give some history.
I've got a back full of instrumentation- Harrington Rods, four other infusion surgeries with screws and other metals so there was a space of about 2 inches in my spine for the doctor to go through with the leads. In the trial, the doc was able to get one lead in on my right side and I felt no pain, but when I finally found a doctor who would put the SCS in my back, the pain never left like it did during the trial.
Anyway, so I've got a SCS that gives me maybe 20% less pain (if that) and now we're experimenting with other options. I tried methadone for one month. The last pill I took, and I not joking, the pain came back. it was the craziest thing. So, I figured that one wasn't working and I wasn't going up on it. So, we tried the fentanyl patch - have you read the directions that come with the patch? Well, I didn't until the third day, when I was changing it. Holy cow, talk about a wake-up call. There went all my fun. We had just moved to the beach! No sunbathing. I love to have wine. No alcohol. or you will DIE!
But, by the end of the month it was making a difference in my back, only I still have pain during the day if I get up and do something. And then I was diagnosed with Type 2 Diabetes.
So, I went to my pain doc and I'm trying oxycodone which is no help, well, it helps for 3 hours and I'm suppose to take it every 6 hours. So, I guess I'll go back on the patch. What I want to know is this...has anyone here ever had any good results by being on the patch? And if not, then what are you on for Chronic Pain?
Thanks a bunch!