I have Crohns disease. I have had a rectovagina fistula since 12/2014. I also have an ostomy. I take Remicade for my Crohns and while it may help others heal and close their fistulas--it has not worked in that manner for me. A fistula does not necessarily cause you to have an ostomy. My ostomy was caused by an obstruction in my sigmoid in Sept. 2016. I have a friend that had her fistula repaired and she did not have to have an ostomy. I can also honestly say that you would never know I have an ostomy if I did not tell you. I was recently laying flat on my back having tests and I told my tester. She didn't know, couldn't tell, and was very surprised.
It is no big deal.
The fistula.... Does your fistula leak fecal matter or is it mostly mucus? Have you tried to keep a food diary to figure out what causes you pain after you eat it? There are certain foods, and they are different for everyone, that may cause your body to have a higher acid count. Because the fecal matter goes down the vagina it causes irritation. What helped me was douching with plain sterile water. I also bought Calmoseptine for the outside of the vagina area and it helped immensely. I also would take hot bathes with epsom salts. Finally after I went, if at home and I was in pain, I would take a shower and ensure I cleaned myself really well and I would blow the area dry.
If you do start a food diary please do not forget to list herbs and spices. Two things that do impact me are garlic and cilantro. My friend....it was pepper, bagels and cheeses. Everyone is different. Some people will tell you it doesn't matter what you eat. My experience has been different and it makes a tremendous difference.
I hope these suggestions help. Best of luck with your fistula repair. I start my journey down that road this summer.
Post Edited (clo2014) : 12/15/2016 11:35:48 PM (GMT-7)