Posted 12/12/2016 5:44 PM (GMT -6)
Targeted antibiotics, got my SCS explanted & had a world-class reconstructive plastic surgeon who was able to surgically excise, irrigate & whatnot the infected tissue to get the bacteria count down far enough that more targeted antibiotics could finish clearing up the infection via drains & whatnot that were left in for a few weeks post-op.
I didn't fight hard enough for what I KNEW was going on with my own body. I accepted that the tests the doctors ran initially were the "right" ones & that this whole "infection obsession" was all in my head (and my boyfriend's head, apparently, as he could feel through my shirt that the area on my back was much hotter than the rest of my body). I left it alone for 3 years & ended up with a open wound. Then, they just kept trying to wash out the wound & sew it closed ... when what they needed to do was get the infected implant out of my body & then leave the wound open so the massive amount of bacteria-riddled pus could drain out of me. So now I know that no matter how many fancy degrees or medical licenses someone has, that doesn't automatically mean that they are right & I am wrong. I had never heard of pseudomonas stutzeri until the labs came back with that. All I knew was that I had an infection. I could feel it. It hurt like crazy; it was radiating heat & it was red/inflamed almost all the time. So now I try to stand up for myself & believe that the knowledge I have about my own body matters when making a diagnosis, and I encourage other people to do the same!