Like Susie said, I also have CRPS and I have been doing ketamine infusions for going on 2 years now. It took me almost 10 years to get diagnosed, as I have an atypical presentation (my eye and face are affected, not one of my limbs), but the ketamine infusions, along with low dose naltrexone, and intranasal ketamine for breakthrough pain, has been life changing for me.
I was on so many medications before, including massive doses of opioids, but nothing helped, and the side effects only made things worse. I had to take multiple medical leaves from school because of the severe pain, depression, and fatigue. And I was on my second year-long leave, and pretty much non-functional, with little to no quality of life when I was finally referred to my current doctor, a CRPS specialist, and was finally diagnosed. Now I have been back in school full-time for the last year and a half (with the exception of the couple weeks I have to take off for my infusions every few months), my depression has completely resolved, my fatigue is thousands of times better, and my pain is decently controlled most days. Now, most days I can actually function like a semi-normal human being!
Insurance coverage definitely can be an issue, though, and may be something that you want to look into beforehand. Ketamine is being used off-label for the treatment of CRPS/pain, so it is considered experimental, which means that insurances don't want to cover it. My own insurance sometimes covers my treatments and sometimes doesn't (it seems entirely random), and I just lost an external appeal over several infusions that they denied due to them being "experimental." It is very frustrating, because all of the external reviewers basically said "this person is an excellent candidate for ketamine infusions, and we have no doubt that the infusions are helping her greatly, but because there is a lack of data on the efficacy of these infusions in people in general, we're still siding with the insurance company and saying that they don't have to cover them." But apparently not everyone has issues with insurance coverage -- just us "lucky" few.
Anyways, definitely something to look into. And I'm happy to answer any questions you might have about
the infusions, etc. Ketamine certainly isn't the answer for everyone, and it's not without it's own problems and risks, but it definitely has made a big difference in the lives of many CRPS patients, including myself.
Post Edited (skeye) : 3/29/2017 5:42:05 PM (GMT-6)