Are you seeing an endocrinologist to monitor and treat your secondary adrenal insufficiency?
You and I are in a similar boat.
Long-term corticosteroids are killing me, literally, through collapse of my skeletal system and compromised immune system. I have both primary Addison's disease and secondary adrenal insufficiency, so I depend on corticosteroids for basic survival.
With each epidural injection, you are wrecking havoc on your HPA axis (hypothalamus-pituitary-adrenal gland axis). Pituitary suppression and secondary adrenal insufficiency follow.
One of the cardinal features/symptoms of untreated adrenal insufficiency is severe bone, joint, and muscle pain. It is severe, debilitating, all encompassing pain.
I have to wonder if a portion of your upper back and cervical pain is also due to insufficiently treated adrenal insufficiency. You really need an endocrinologist with speciality in pituitary disorders to regain any semblance of a life. This is a complex and complicated endocrine disorder.
Your years of epidural injections would be reason enough for secondary adrenal insufficiency to materialize. Add in the 100 mg SoluCortef with your regular Lupus infusions and you have a perfect storm of prolonged exogenous corticosteroid use that lends itself to cause pituitary suppression and adrenal insufficiency by association.
Before I was diagnosed, the joint, bone, and muscle pain that I experienced was beyond descript
ion. My entire body ached, severely. Day after day, there was no reprieve from the bone and muscle pain. Looking back, it was a very dark time of my life and the horizon looked bleak. If indeed a portion of your pain is related to secondary AI, I can empathize with how demoralized you must feel. I often wondered if I could continue to survive. I was a zombie. Barely existing.
Be cautious about
continued epidural injections. The corticosteroids of the epidural injections will add insult to injury to your already struggling pituitary gland and, by association, your adrenal glands and cortisol and aldosterone production. Cortisol is a life-essential hormone. It is needed by every cell in the body. Cortisol is also the body's prime anti-inflammatory agent. Low cortisol = widespread inflammation of the body's connective tissues = severe and broad-based body pain.
An endocrinologist with pituitary speciality would be a valuable consultation for you to arrange as soon as possible. I can give you the names of 2 organizations that can help you locate a competent neuroendocrinologist, if you want to take a new course of action.
I am seen by a neuroendocinologist. My life quality is not great but it is better than it was pre diagnosis.
- Karen -
Pituitary failure, wide-spread endocrine dysfunction
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)
Post Edited ((Seashell)) : 4/7/2017 11:39:42 PM (GMT-6)