I Am SO Very Confused

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dar2017
New Member


Date Joined Sep 2017
Total Posts : 16
   Posted 10/30/2017 3:20 PM (GMT -7)   
So last I posted they found a 6mm lesion/tumor on a CT. An MRI with contrast was ordered. The lesion/tumor didnt show up on the mri. ?!?!?!?!?! HUH????
Here is what was found:
Few scattered foci of the lateral frontal predominant subcortical white matter T2 hyperintensities.

What does this mean???
I didnt get to talk with the doc today. I just picked up my results. The triage nurse didnt have any info. But I need to know what that sentence means. I am clueless and I cant find much info on it.
I have been numb on my left face and left arm for the last 4 days. I am scared that I yet again have to start from square 1! AGAIN! My legs dont want to work, words and sentences are hard to come by. Its lasting longer and happening more frequently. What am I supposed to do? Just wither away? Slowly? In pain?

rocckyd
Veteran Member


Date Joined May 2012
Total Posts : 1092
   Posted 10/30/2017 8:47 PM (GMT -7)   
I wish I could give some sort of helpful advice, but I have no experience in what you are feeling. I do hope that you can get some answers so your life can get back to normal. It's awful when pain rules our world.
Single mom to my little man 11yrs old
39yrs old. JRA since a kid. Chronic Uveitis, pleurisy, pericarditis, intersticial lung disease, sjorgrens syndrome, Cushing's Syndrome, gastroparisis
Bilateral TMJ replacements due to bone fusion, port-a-cath, g/j feeding tube, antiphospholipid antibody syndrome(my blood fights itself) epilepsy, MCTD, dysphagia(unable to swallow correctly)

(Seashell)
Veteran Member


Date Joined Dec 2012
Total Posts : 675
   Posted 10/30/2017 9:21 PM (GMT -7)   
Dar2017:
I have a 1cm pituitary adenoma (1cm = 10mm). I wrote from my experience and acquired knowledge of pituitary adenomas.

A pituitary adenoma that is 1 cm or larger is called a macro adenoma. A pituitary adenoma that is smaller than 1 cm is called a micro adenoma.

The pituitary gland sits in a bowl-shaped boney enclave at the base of the brain, just behind the sinuses, called the sella tursica. The pituitary gland is the size of a small pea.

Full brain CT scans and MRI scans can lack adequate imaging sensitivity to uncover a small pituitary micro adenoma. Detection of a micro adenoma often requires an MRI with specific focus of the sella tursica using gallium contrast. A Tesla T 4 magnet is often necessary to detect a micro adenoma. An older generation of MRI magnet (T 3 and lower) may be insufficient in imaging acuity to detect a micro adenoma.

As I mentioned to you in an early thread, a pituitary adenoma, in and of itself, is not necessarily symptomatic. It is estimated that 1 in every 5 individuals has a inconsequential pituitary adenoma. That is, 1 in every 5 individuals has a pituitary adenoma that has no adverse effects.

A pituitary adenoma of 6 mm would have no mass effect on brain tissue. A 6 mm pituitary adenoma is too small to have any effect compressing adjacent brain tissue nor cause a mid-line shift in brain tissue. A 6 mm adenoma would have an adverse effect depending on whether or not it secrets an excessive amount of one of the pituitary gland’s primary hormones. An adenoma that secretes excessive cortisol, for example, is the basis of Cushing’s syndrome. Pituitary adenomas form by over-replication of one of the pituitary gland’s primary hormones. The basis by which a micro adenoma forms is owing to an over abundance of one of the pituitary’s primordial cell types. As an example, my pituitary adenoma was growth hormone secreting.

To be honest, the symptoms that you list (numbness of the side of your face and leg; profound leg weakness; loss of motor control to a leg) are not symptoms typical of a pituitary adenoma. Your symptoms are more suggestive of a central nervous system demyelination process or small foci white matter strokes/cerebral blood flow disruption or a movement disorder with origin in the deep motor nuclei (ex. Parkinson’s).

What type of physician (speciality of practice) are you seeing?

Bottom Line: A pituitary micro adenoma is often too small to be detected by a full brain MRI. The adenoma seem on a CY exam may be too small to be seen by a whole brain MRI. To visualize a microadenoma via MRI the better option is to ordeee a MTi aoecific to the pituitary gland with administration of IV gallium as a contrast agent. The symptoms you cite are not commonly associated with a pituitary adenoma. Symptoms of a pituitary adenoma are aligned with the excess hormone being secretes. Ex. My growth hormone secreting adenoma caused symptoms of bone and joint pain, enlarged feet/shoe size.
Karen


Pituitary failure, wide-spread endocrine dysfunction
Addison's disease
Mixed connective tissue disorder
Extensive intestinal perforation with sepsis, permanent ileostomy
Avascular necrosis of both hips and jaw
Receiving Palliative Care (care and comfort)
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