Lisfranc fracture

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Cylle
New Member


Date Joined Nov 2017
Total Posts : 2
   Posted 11/6/2017 7:42 AM (GMT -7)   
Hi everyone.

I had a Lisfranc fracture of my foot 2 years ago and since have had a miserable time with arthritis and nerve pain. My Dr told me on Friday that he is not really sure where to go from here, but we should use this week to come up with ideas on what to do next. I thought he was the 'idea and script' man and I was the whiner with a sore foot.

I have seen previously a chronic pain specialist who said that my drug regimen was OK, but I never asked him what I should do if my Dr didnt know what to do. I have also seen a Ortho surgeon who thought I should not take anymore drugs and just take vitamin C and if I wanted my foot amputated he would refer me to a Psych Dr, because that is the first step in the process. I was referred to these Drs because my Dr thought it would be good to have another Drs opinion.

My drugs are 600mg pregabalin and 50mg amitriptyline at night. 20mg/10mg oxycodone/naloxone, 665mg paracetamol three times a day and 100mg tramadol as needed, usually once a day, sometimes not at all.

My nerve pain drives me crazy, absolutely crazy. It feels hot, cold, tingly and sometimes like it is not their at all. When my foot was first repaired the surgeon said if he had to cut through the nerve bundle he would because function was more important and I thought OK, whatever.

The constant achy/stabby 8/10 pain is just ridiculous, I mean, its so bad, I just want to, you know what, I dont even know.

The drugs I take cause restless leg syndrome, especially amitriptyline, making my legs twitch at night, my drugs have been changed around to reduce this to no avail, my Dr wants to control pain first then twitchy legs second.

My physiotherapist told me I needed to walk, I told her I couldnt, but she told me I needed to maintain the movement that I had and by gently stretching the tendons I would gain more. It was the best thing, my foot no longer swells up but I still get alot of pain. So I walk with a limp, but I make walking a priority everyday.

I have read heaps of Chronic pain posts in the past couple of days and compared to everyone else I think, yeah, I am not as bad off and I am probably a whiner. But I really dont know what would treat chronic pain other than the drugs I already take.


Many thanks for reading my post.

Cyl

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 15150
   Posted 11/6/2017 10:16 AM (GMT -7)   
Hello Cyl & welcome to the forum. Just heads up, we don't compare our pain here. It is your pain & you know how much of an impact it makes on your life. it is not about who is worse off. No, not for a moment do I consider you a whiner, nerve pain is horrible. Not only is it horrible, its not easy to treat & you need a very good dr that is knowledgeable in treating nerve pain. Did the surgeon cut the nerve bundle in surgery?

Is there a specific reason the dr wants you on Amitriptiline? It is an older medication that was often used off label to treat nerve pain. Of course this is long before Pregaline & that class of medications came into the picture. I looked at Drugs.com & see that you are on the max dosage of Pregaline so there is no room for an increase in it. Have you ever been tried on the brand name of it Lyrica? I have seen many get better benefit on brand name versus the generic. I also checked on the paracetamol & the max dosage is 2000mg per day. You are on a fairly high dose so I do hope your dr is checking your liver to make sure it is not being affected. Is Lyrica the only medication they have tried you on?

Personally, I just would not consider amputating a limb. I know too many that have had to have limbs amputated & ended up with severe nerve pain & what is called phantom pain. These amputations were not an elective surgery either.

I wish I could offer up something great. Please know coming here & sharing may help a little. Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Cylle
New Member


Date Joined Nov 2017
Total Posts : 2
   Posted 11/6/2017 6:14 PM (GMT -7)   
Hi Susie, thanks so much for your reply.

I take the Lyrica brand of pregabalin and I take the amitriptyline for both nerve pain and to help me sleep. I have tried gabapentin but I needed a really high dose to feel any benefit and I became really dizzy.

Yeah, the nerve bundle was cut. I thought that meant I would not feel my foot! Instead it just feels strange.

Because the nerves are already so confused I think amputation would not help either, I would just get phantom limb pain like you said.

I have already gotten so much out of this forum.

I wish everyone well on their journey.

Have a great one,
Cyl
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