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Tweetybird1969
New Member


Date Joined Dec 2017
Total Posts : 3
   Posted 12/13/2017 10:41 PM (GMT -6)   
I have a question, I received my medtronic pain pump on December 4, 2017...the pump is placed on the left side in my back below my waist line. I've started having pain in the front of my leg to my knee... Also waiting to get morphine in pump so dealing with withdrawals as well. I welcome any advice I can get, I feel like I'm losing my mind!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16020
   Posted 12/14/2017 8:58 AM (GMT -6)   
Hello Tweetybird & welcome to the forum. I do hope you have some oral medication to take to help with the pain. When is the dr planning on filling your pump?

My pumps have always been implanted in my stomach on the side. I cannot imagine what is causing this new pain. Have you called the drs office & let them know what is going on? If not, I would call them & see what they have to say about this.

I am sorry that I am not of any help. Keep us posted.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Tweetybird1969
New Member


Date Joined Dec 2017
Total Posts : 3
   Posted 12/14/2017 12:09 PM (GMT -6)   
I go back to the doctor the 20th to fill the pump, I do have regular pain meds in the interim... I'll definitely give them a call!

CheleL
Veteran Member


Date Joined Sep 2012
Total Posts : 1491
   Posted 12/28/2017 6:57 PM (GMT -6)   
Hey Tweetybird-

How are you feeling after your pump fill?

I've had mine almost two years now and it helps so much. Right after my first fill, other aches and pains arose because I had been walking so oddly for years. Took my body a while to settle back into a normal routine.

Good luck! I hope it helps!
Depression, Spinal Stenosis, Disc Herniations, Fusion lower back, Chronic Pain
------------------------------------------------------------------------
The most important thing you can give someone is a chance.

Tweetybird1969
New Member


Date Joined Dec 2017
Total Posts : 3
   Posted 12/29/2017 5:51 AM (GMT -6)   
I'm going okay, Thank you so much! Still dealing with some withdrawal symptoms but overall much better!

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16020
   Posted 12/29/2017 7:54 AM (GMT -6)   
Tweetbird, glad to read that you are doing ok. It takes a bit to get your pump to the therapeutic level. How often is your dr increasing your pump? Has he discussed using your PTM? Some drs wait until the dose is stable & some do not, it depends on the dr.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Bamatami
New Member


Date Joined Feb 2018
Total Posts : 2
   Posted 2/12/2018 5:18 PM (GMT -6)   
Tweetybird,

I, too, have just had my Medtronic implanted on 1/19/18 and in almost the same exact location! Mine is a little above my waistline. We are a "rare" breed, in that, almost every patient chooses their stomach. My doctor has done over a hundred implants, but never in this location. All of the OR staff, including the Medtronic rep, were freaking out prior to my surgery. But, I am a stomach sleeper and I lie on my right side quite a bit, so this was my idea. My doctor agreed and afterwards said it was the best implant he'd ever done! Even the rep was quite impressed as to how well it went.

But, to answer your question, I'm not having any "new" leg pain since the implant. It might be, as someone has suggested, pain from you moving differently or you being a little more active. I hope this helps and that you are doing better. I'm still in the process of having my dose(s) adjusted and have only seen doctor once since my initial fill. Best of luck to you! Let's hope this works!! smile

Taller Now
Regular Member


Date Joined Jun 2014
Total Posts : 300
   Posted 2/13/2018 12:23 AM (GMT -6)   
I like the idea of the back! They can probably get it higher above your belt line tha way, right? That is a concern I have with clothing. Does it feel weird when it first goes in?did you get a spinal headache when they put it in? We’re y in outpatient or in hospital?

Best wishes to you!
Failed C4-7 ACDF on June 2014:Large plate, 8 screws: done for spurring, spinal cord compression. Pseudoarthrosis C6/7, T1 and C3 moved, foraminal stenosis after surgery. Facet arthrosis C0-4, severe osteoporosis, DDD, osteoarthritis - all levels of spine
Failed L5/S1 LD surgery, spondylitheisis, spondylitis L4-S1, nerve pain in legs and arms
Migraines, cervicogenic headaches,hysterectomy, melanoma

Bamatami
New Member


Date Joined Feb 2018
Total Posts : 2
   Posted 2/13/2018 10:54 AM (GMT -6)   
Taller,
It is higher on my back. It's right above my waistline on the L side. My doctor was apprehensive when I told him I wanted it in my back, rather than my stomach, because he had moved several from the back to the stomach. He said they were in the upper buttocks area and patients were complaining of the pump interfering with their "sitting." But, he and the Medtronic Rep were tickled because they said it fits perfectly in that area and you also don't have to run the catheter from the front to the back, so the catheter length is much shorter. Both said it was the easiest and smoothest implant they'd ever seen. And, I have not once, had an issue with it's placement! It's not as easy to place the PTM back there, then it would be the stomach, but Medtronic will send you an external antenna that plugs into the PTM, so you can hold the PTM in front with the antenna around the back. I find it's easier to use it without, now that I know exactly where to place it. It's never felt wierd, and to be honest, I don't even know it's there! Plus, it is so flat, you don't even notice it. I did, however, have intermittent headaches for about 5-7 days post-op. I just took some ASA and/or generic Excedrin and that made them tolerable. I haven't regretted once the placement area of my pump!! Oh, and I did it on an outpatient basis, with no problems whatsoever! So, far I'm extremely pleased. We've got some adjusting and tweaking to do, but I'm very happy I made this decision! Here in Florida, the opioid laws are very stringent and all of the PM physicians here abide by the CDC's MEDD rule. So, my oral and Fentanyl patch RX's were cut by 60% in a month's time. This is a much easier "route" if you will, with better outcomes and I would recommend it highly!

Best of luck to you!!

LivinginHell
New Member


Date Joined Mar 2018
Total Posts : 3
   Posted 3/23/2018 1:44 AM (GMT -6)   
Bamatami said...
Taller,
It is higher on my back. It's right above my waistline on the L side. My doctor was apprehensive when I told him I wanted it in my back, rather than my stomach, because he had moved several from the back to the stomach. He said they were in the upper buttocks area and patients were complaining of the pump interfering with their "sitting." But, he and the Medtronic Rep were tickled because they said it fits perfectly in that area and you also don't have to run the catheter from the front to the back, so the catheter length is much shorter. Both said it was the easiest and smoothest implant they'd ever seen. And, I have not once, had an issue with it's placement! It's not as easy to place the PTM back there, then it would be the stomach, but Medtronic will send you an external antenna that plugs into the PTM, so you can hold the PTM in front with the antenna around the back. I find it's easier to use it without, now that I know exactly where to place it. It's never felt wierd, and to be honest, I don't even know it's there! Plus, it is so flat, you don't even notice it. I did, however, have intermittent headaches for about 5-7 days post-op. I just took some ASA and/or generic Excedrin and that made them tolerable. I haven't regretted once the placement area of my pump!! Oh, and I did it on an outpatient basis, with no problems whatsoever! So, far I'm extremely pleased. We've got some adjusting and tweaking to do, but I'm very happy I made this decision! Here in Florida, the opioid laws are very stringent and all of the PM physicians here abide by the CDC's MEDD rule. So, my oral and Fentanyl patch RX's were cut by 60% in a month's time. This is a much easier "route" if you will, with better outcomes and I would recommend it highly!

Best of luck to you!!

May I ask, how is it morally ethical for a doctor to reduce a drug like fentanyl by 60% within a one month's time? What about first do No harm?? I live each week prior to my PM appt in tremendous anxiety, etc., that something similar may happen to me. Even tho I have a clean urine monthly and have always kept to the contract signed with my physician. Who is going to stand up for those in serious chronic debilitating pain? I know of several individuals who have committed suicide rather than live as they had prior to the reprieve pain mgmt gave them.
I endured nine very, long years in bed while undergoing over 25 abdominal surgeries trying to alleviate my cause of pain, until a surgeon told my husband and I that the next time I was operated on would likely be the last. The surgery that I’ve begged of him, was that he remove all my intestines, all of my female organs, and any other organs that could be safely removed as well. All this I was willing to endure in order to mitigate nine long unrelenting years of pain. He then suggested pain mgmt. Something we had never heard of and no one had ever suggested. Only suggesting MORE SURGERY. In the 15 years since that auspicious appt I have only had one, unrelated surgery. That SHOULD speak volumes. I now know that I WILL NEVER, EVER GO BACK to living the way I did prior.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16020
   Posted 3/23/2018 8:35 AM (GMT -6)   
Several years ago the CDC came up with guidelines concerning treatment of chronic pain patients. The medication daily narcotic dosage is not to exceed the equivalent of 90mg of Morphine a day. This individuals daily dose combined may have exceeded that, therefore the dr reduced the dose. Drs are using these guidelines, Medicare is the same way & script insurance coverage too. Do no harm went out the window. The script monitoring program tracks drs & patients that are receiving narcotics so there is a record on everyone of us. Drs do not want to get flagged.
Susie
Moderator in Chronic Pain & Psoriasis Forums
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