Introducing myself

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MoxieChick
New Member


Date Joined Dec 2017
Total Posts : 2
   Posted 12/28/2017 1:42 PM (GMT -6)   
Hello, All. Just want to introduce myself...

I'm in my mid-forties and have been living with chronic pain since I was 31. A minor injury to my hand in my office at work in 2002 brought on my Chronic Regional Pain Syndrome (CRPS) - aka Reflex Sympathetic Dystrophy (RSD). I worked for a few more weeks after that, but the pain became so debilitating, that I was no longer able to continue my career. I have been totally disabled and on SSDI since then. For roughly 10 years, my disorder was confined to my right upper extremity, but over the last 3-4 years, it has unfortunately spread to my legs and torso.

As I find myself more and more isolated due to my disorder, I've been searching for an online support group to receive and give emotional support. I've tried a few other sites/forums, but they seem to be dedicated solely to swapping ideas about medications and treatment strategies. That's fine, but not what I'm looking for. Hoping to simply get some emotional support and maybe also pass on some of my wisdom from living with chronic pain for 15+ years.

skeye
Veteran Member


Date Joined Mar 2008
Total Posts : 3089
   Posted 12/28/2017 7:12 PM (GMT -6)   
Hi Moxie,

Welcome to HW! I can relate a lot to your post. I am not yet 30, but I also suffer from CRPS. It was confined to my eye and face for 11 yrs (onset was due to trauma), but within the last few months it has spread to both of my legs thanks to back surgery.

Chronic pain in general, and I think especially CRPS, is very isolating. Unless you have been through it, you don't understand. Emotional support is so important, and it is often something that is lacking in our daily lives because family members, friends, etc just don't get it. I know I've personally been having a very hard time dealing with my recent spread, and I find it hard to talk to anyone "on the outside" due to the lack of understanding, so I've mostly just stopped trying (which of course is not good, either). It's tough. There are so many things I want to talk about, but can't. So it is nice to have a group of people to talk to who understand what you are going through.

That being said, there aren't many of us left on the forum who have CRPS. There used to be a handful of us, but now I think it is pretty much just me. And while I sometimes find support here, I find this forum to be better for more generalized or common chronic pain issues than CRPS specific stuff. The forum is also not as active as it used to be. But everyone generally tries to be supportive and helpful when they can.

Anyways, sorry that you are dealing with this horrible disease, but I must admit, I selfishly am glad to see another fellow CRPSer on the board. I hope you find the support here that you are looking for! I look forward to seeing more posts from you.

Skeye

Post Edited (skeye) : 12/28/2017 6:21:06 PM (GMT-7)

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