I’ve been dealing with chronic, persistent large ovarian cysts on and off for 3 years. I was previously treated with depo lupron (successfully) after having a cyst removed that returned a week later. They’ve been returning but haven’t caused the extreme pain again until now. I’ll add, I lost my right ovary due to torsion from a large cyst.
My most recent cyst made itself known on Thanksgiving, I toughed it out until it became unbearable & went to the ER 5 days later. They did an ultrasound where I later found out they didn’t even visualize my ovary (I have had multiple abdominal surgeries so perhaps it was scar tissue), I was discharged with the doc telling me he didn’t know why I had pain & didn’t treat or address the pain... So, I saw my primary doc who told me it was my ulcerative colitis acting up, prescribed Flagyl & Cipro (again, nothing for pain). Five days of taking the antibiotics, I had no improvement so I called back, she put me on prednisone. All this time I’m telling my husband: This is not UC Pain! I have no UC symptoms AT ALL!
Two days later I was in even more pain, couldn’t sit still or get comfortable due to the stabbing, nauseating pain. My husband took one look at me & took me back to the ER. There they did another ultrasound & CT-yup, a complex septated cyst! This time I was given morphine & Tramadol (after they tried giving me Motrin that I can’t take due to ulcerative colitis and my dogs rx of Tramadol showing up under my medication records-once I told them it was for my dog & they checked the second screen, he wrote the script).
Last week I finally saw a GYN. She told me I’m too high risk for removal and told me progesterone for 3 months was my option and she’d call it in. Of course with the war on drugs, nothing else was offered for pain. During my visit I told her I cannot tolerate birth control pills (and depo provera due to it causing incredible constant migraines). Needless to say, the med has yet to be called in even though the tech I checked out with said she’d call it in, I called to remind them the following day and left a message on their patient portal!
The pain woke me at 2 am this morning. Sitting here, I decided to do some research on what hormones are in depo provera and mini birth control pills...what do you know?! PROGESTERONE!! Why would I lie about not tolerating birth control hormones?! For crying out loud, I have two children 18 months apart due to that!
I am so frustrated that doctors have lost all sense of compassion and DO NOT LISTEN to patients! I’ve had a miserable Thanksgiving, Christmas and New Years due to this pain... If I hadn’t already been to the ER twice, I’d go-but what will they do? This is so exhausting!