Posted 2/25/2018 5:40 PM (GMT -7)
Hi Shelley, I was on OxyContin 40mg every 8 hours for many years, but when I moved it was difficult if not impossible to continue with my pain current management, (in the state I currently live in it is near impossible to find doctors that would prescribe the pain meds I was on) so I was making a 300 mile trip ( one way) every month back to my original pain management doctor I Illinois. During the winter is was often extremely difficult to make that trip, especially if the weather was really bad. So after talking with my pain management doctor about other possible options, he referred me to the University of Indiana Pain Clinic in Indianapolis for a consult to get a implanted pain pump. I got it implanted in June of 2014, and it has worked very well for me! It only covers a limited area, mine is in the lower back and it gives me very good relief and control over my lower back and sciatica pain, (which is my most bothersome and debilitating pain) but does nothing for pain caused by my thoracic or cervical spine. Anyway I go up to Indy and get my pump refilled and reprogrammed every six months. So far this has been a real Godsend for me, and I am completely off all oral pain meds. I do take Baclofen 30mg every 8 hours to control muscle spasms and that also helps control my pain!
As for what I do with my time, well I learned the hard way, what one shouldn't do, It's very easy when your in pain and can't work, or go out and do the stuff you used to do, to isolate ones self! That's a big huge mistake! Admittedly allot of people (family and friends, and maybe even spouses)often cannot relate to your pain! At least wise, unless your constantly wincing or crying all the time or other wise, outwardly showing you pain! I can't begin to tell you the number of times I've heard this said: ( ""you look fine to me! or You don't look or act like you're in pain!"") Well what does pain look like? Anyway family and friends that don't understand often go by the way side, and one becomes even more isolated! My advice is keep your friends and family close, and force yourself to do stuff and participate in doing activities with family and friends even when your not really up to it! Try not to let your pain define you! It took me a long time to realize that! Allot of people on this forum, ( past and present) helped me get through some very trying times during this change in my life!. Just realizing I wasn't alone and as bad as things might be or seem for me, there is always someone who has it allot worse! And that puts things into perspective! Shelley I worked on an Oncology Unit and when I look back and remember what allot of my patients went through and how bad they had it,......well...... my situation is nothing compared to most of theirs!
Anyway the things I do, well I have a couple of raised garden plots, and I tend my garden, and I am getting back into doing some drawing and wood sculpture. Through my church I help make deserts and help serve at my local open Hands Pantry, serving supper once a month. And I have a dog that keeps me busy too! Ha. Allot of times I over do it, and yes I "" pay the piper!"" when I do! But although my life has changed and I still dearly miss doing Nursing, I persevere and continue living my life the best I can!
I've been on this forum for quite a while now, and allot of my posts explains things that I have found helpful in relieving my pain over the years. And I have found just helping others on this forums, helps me too! I do wish you all the best!
Moderator Chronic Pain
USAF retired in Sept.1991. I went back to school and became a licensed RN in 1994, I worked on Oncology and Med Surg, Disabled in late 1999, was approved SSD in early 2002! Diagnosed with: DDD and Multiple herniated Disks; Foraminotomy L3/4/5 Jan 2013; Posterior Articular Joint fusion Nov 2010; C5/6 ACDF Sep 2009; C6/7 ACDF 1985; Implanted pain Pump Jun 2014.