sudden onset violent spasms near throwing me out of bed in AM

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Veteran Member

Date Joined Oct 2009
Total Posts : 4970
   Posted 2/23/2018 5:37 PM (GMT -6)   
I've had spasms for a long time, mostly in my legs, but in the last few days it's suddenly gotten severe, waking me up and nearly throwing me out of bed in the morning. Getting up and moving was horrible, but the only way to get spasms under control enough to get .

I have at least 3 possible causes: broken neck with paralysis from shoulders down which is livable now; post-polio syndrome which has been causing worsening problems with swallowing and maybe hands and legs (hard to differentiate from my spinal causes - 7 fractures); brain meningioma which is getting checked again next week.

My neurologist said cervical MRI in December didn't look much worse. EMG showed only carpal tunnel. I called him about the spasms and he prescribed Baclofen, which I tried before for lesser spasms and didn't tolerate. OK, I'll try it again, but only at night and not to the point of sleeping all day again. His Rx was TID.

Doctors mostly have forgotten or never learned about post-polio, but it hits 30 to 50 years or more after the disease, and other family members are suffering from it. It's known to cause spasms.

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Date Joined Feb 2003
Total Posts : 15857
   Posted 2/24/2018 7:41 AM (GMT -6)   
Alcie, I wish I had some good words of wisdom for you but I just really do not know what to think. I hope this time around the Baclofen at bedtime will give some relief. All I know is you need a break from all of this.
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