I'm a 27 year old woman from germany (so if I don't express myself correctly please bear with me) and new in this forum and would be curious about
your opinions, thoughts and eventually suggestions regarding my pain situation.
I have pain since almost 8 years by now... I can't exactly tell how it all started but in 2010 I started to have very intense pain in my bladder. It might have been either a bladder infection or from biking since during this time I have been using my mountain bike a lot. The pain got so bad that I couldn't sit on the seat of my bike anymore. I went several times to hospitals because the pain got so excruciating and I could barely leave my flat or the bathroom.
My pain ranges from a burning sensation to a stinging pain like with a knife. While the burning is mostly in my bladder and urethra as well as in my vagina and vulva, the stinging I feel in my pelvic floor. I also have pain when pressure is put on the bladder whether from inside or outside and when my bladder fills. Sex is almost impossible and after orgasm I have very intense pain also in my ***oris (the pain is always there but gets worse after it). There are also certain foods and drinks which cause me pain like coffee, green and black tea, cola, fruits and vegetables, licorice, juices and alcohol.
Additionally, I have pain in my arms without doctors knowing what it could be. I have been to orthopedists and neurologists already.
I have taken various antibiotics, painkillers which didn't help much, tricyclic antidepressants, homeopathy, instillations and supplements which got suggested by members of this forum but also on other sites including marshmallow root, frankincense, quercetin, bromelain, ginger. I have also tried some doctors suggestions, I might not remember everything now. I've also had a TENS device to strenghten my pelvic muscles and later on I've tried reverse kegels.
So far, I've only had two diagnosis by doctors. One is pudendal neuralgia and the other fibromyalgia. Both got rejected by several other doctors so that I'm feeling lost and alone now. I've had various tests done by doctors like cystoscopies, laparoscopy (due to suspicion of endometriosis), urodynamic, uroflow,..
I've been to so many doctors, to clincs for weeks, had several tests and precedures done without any results and conclusions . I would be so thankful if any of you would have ideas and suggestions what else I could do or try and if you think I might have IC or PN (pudendal neuralgia)
Thank you in advance for reading and also for any replies