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Katylouise
New Member


Date Joined May 2018
Total Posts : 1
   Posted 5/16/2018 5:05 PM (GMT -6)   
Hi guys, I’m wondering if anyone can give me any help! I’ve spent the last two years suffering with extreme pain, in December I was finally operated on and had my left ulnar nerve released and repositioned! I had no follow up appointments or physio planned by the hospital and unfortunately suffered with the same pain post surgery so I organised to see my surgeon and today was the day! First of all it was the worst hospital appointment I’ve ever experienced, as soon as I walked in and explained I was still in pain my surgeon told me there was nothing more that he could do and it would now be a case of dealing with chronic pain for the rest of my life basically! I’m 24 years old and this seems like such a crazy outcome, I’m so surprised that he’s laid this on the table before even considering any alternative investigations into it! I’ve had no nerve tests done EVER the only thing they’ve done is an MRI 2 years ago.. I’ve asked to be referred for a second opinion which is in 7 weeks time but any advice would be much appreciated.

straydog
Forum Moderator


Date Joined Feb 2003
Total Posts : 16578
   Posted 5/16/2018 8:39 PM (GMT -6)   
Hi Katy & welcome to the forum. I do not know where you live but your surgeon has treated you horrible. Who took your stitches out? This particular surgery is a long one to heal from it takes months to heal. Dealing with nerves is a different healing process altogether. I urge you to get in with another dr as soon as you can.

We have not had anyone recent that has had this surgery. You can use our search feature here & pull up older threads to read if you would like.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

pitmom
Veteran Member


Date Joined Jan 2015
Total Posts : 2373
   Posted 5/17/2018 7:24 AM (GMT -6)   
Wow. I cannot imagine having a transposition done and no p.t. afterward! I was put on Elavil post op, to help with the nerve pain. I also did at least 6 weeks of p.t. which helped desensitize the nerve and keep scar tissue at bay.

Have you been massaging the area? This may help with both nerve sensitivity and scarring.

All of the 'tributary' nerves that had to be severed in order to move the ulnar nerve are also regenerating and hyper sensitive. Then, the tissue that got disturbed to re place the nerve are also healing. The swelling should have stopped by now, though.

If you can, see a neurologist.

Ice helped me the most with the nerve pain as it tended to come on strong intermittently. I rested my forearm on pillows with a heating pad the rest of the time. Massage helped with blood flow and desensitization.

Now that my nerve is 'buried' in the muscles of the forearm, overuse will cause an achy feeling down the length of the new placement. I use Ibuprofen for this. Warm soaks in Epsom salts may help, too.

I cannot rest my forearm on the edge of a table or desk. Bumping my forearm can produce the feeling of 'hitting the funny bone'. I still have some numbness and tingling although it has diminished over time. My injury and surgery were back in 1996.
multiple surgeries for rotator cuff both shoulders with residual chronic impingement syndrome, ulnar nerve transposition, carpal tunnel release, multiple wrist surgeries, multiple herniated discs, tarlov cysts, whiplash, bursitis of hips, grade 5 right shoulder separation and torn labrum, ovarian cysts, fibroid tumors of the uterus

RochesterEast
New Member


Date Joined Feb 2018
Total Posts : 12
   Posted 6/26/2018 3:33 AM (GMT -6)   
You need an occupational therapist to help you with desensitization. Lidoderm patches, tramadol, and gabapentin (low dose) help about 30%. I’m on surgery number four over a five year period. The only positive thing about the pain is that it generally means the nerve is working just irritated badly by scar tissue. I have lost my career as a videographer because of it. Mindfullness and always trying something new to treat it helps. I am waiting on the cannabadiol just approved by the fda to be allowed for nerve pain. Treating pain without addiction worries will be great.

RochesterEast
New Member


Date Joined Feb 2018
Total Posts : 12
   Posted 6/26/2018 3:42 AM (GMT -6)   
My additional advice is an occupational Dr. that uses ultrasound to see the nerve. She found the exact spot where all the scar tissue is in my arm near ulnar nerve at the elbow (where transposed.)Had a few steroid lidocaine injections near nerve n scar tissue. Helps for like a month. They are painful as a warning...Best part is it gives you the knowlege to ask your surgeon for a release surgery to clean up what they did before. Mris and emgs are generally useless. My uber painful ulnar nerve tests better than my left arm suprisingly. If its being irritated by scar tissue it will never improve. Don’t listen to the “you have to live with it” lazy Dts.
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