It's been quite a year. I'm 50 years old and I have had psoriatic arthritis for 20 years but was experiencing more symptoms than usual over the last 3 years, including brain fog and loss of balance, muscle spasms and vision problems, so I had a brain MRI in 12/2017. This MRI showed numerous MS lesions, but it also showed a "mass effect" at the top of my C-spine that further proved to be OPLL (ossification of the posterior longitudinal ligament). I was formally diagnosed with MS due to a positive lumbar puncture, but I'll save that for another forum. At the same time I found out that the OPLL in my c-spine is severe enough at C2-C3 that I need a laminectomy and fusion at that level and then laminoplasties at C4-7. In the midst of this I had a breakup of my relationship of 12 years and had started my own business as a mental health therapist in 8/2017. Yikes. Stress isn't good for all of this.
I see some much older posts here about
OPLL, but am wondering if anyone here has had this diagnosis recently and concurrently with other autoimmune diseases since I have 4 others (psoriatic arthritis, MS, Hashimoto's and autoimmune type 1 diabetes). I'm also curious about
what I'm going to need for surgery recovery in terms of help around my home. If you've had this surgery and have autoimmune disorders, did the surgery flare you up?
I know OPLL is rare, even rarer in Caucasian folks (which I am) at 0.2% of the population. My doc is Korean, and he pointed out the severity on my MRI and said, "This is what it usually looks like in Japanese and Korean people. Are you sure you don't have any of that blood?" A sense of humor is good. The pain isn't! Ugh!!
Post Edited (Jayson67) : 7/20/2018 6:49:08 PM (GMT-6)